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I haven’t done a journal search for over 30 years, but I imagine it is a relatively easy task now to plug in a few search terms and get numbers of articles sorted by years published. I would have thought that ‘somatising projection syndrome’ is quite a valuable research topic as it indicates a...

Does no one explain to these people that correlation by itself neither indicates causality nor the direction of causality if there subsequently turns out to be a causal relationship? I suspect there may be a correlation between depression and or anxiety and having both your legs blown off by a...

Oh, how wonderful it must be to have such absolute certainty.

It is interesting the variation in views on home working. My goddaughter works for an American company, based in London. Her section, because of Covid-19, is currently expecting to be working from home until June 2021, but are considering the possibility that that may need to be extended further.

Novelty is a factor for me, both cognitively and physically. I can do an on line grocery order relatively straight forwardly, with an account I had help setting up, but really struggle if there is a several month gap since I last order or doing an order on line from a new company. Not only is a...

Anyone care to define ‘Kings College’ syndrome? [added - given we see localised out breaks and spreading to new associated locations is it a form of mass hysteria]

Undoubtedly social media can spread harmful medical information, but it can also spread useful information and importantly counteract existing harmful information too. Would we be seeing NICE here in the UK rewriting its ME/CFS guidelines if not at least in part for the social media campaign...

And what about the people with supposed MUS, who are habitual under reporters of symptoms because they have given up the medical profession? What about the fact that focusing on every new symptom may be a rational response to a poorly understood condition of uncertain aetiology by people who...

Unfortunately we don’t know about the trials involved in recruiting people to the registry. If my memory serves me correctly, when I was recruited to the FINE trial late on in the study, they were getting desperate to recruit enough patients. I was recruited in a GP trawl beyond their initial...

One of the few plants in the UK that is a pernicious weed by act of Parliament. Each local authority is meant to have an officer responsible for addressing its suppression and to ensure land owners are removing it. A shame we don’t have officers responsible for suppressing the equivalent in...

Here is a report of someone having a second bout of Covid-19 that was asymptomatic the second time round. https://www.sciencemag.org/news/2020/08/some-people-can-get-pandemic-virus-twice-study-suggests-no-reason-panic?fbclid=IwAR0elDy1ibq-jQ-ojzo97Fx6qr5Pr_JwVMl6ydRxrll6DHwxyje0aOc8JIo This...

I was trying to distinguish between those with an ongoing acute active infection at several weeks who are likely to be more severely ill, and long Covid at several months where presumably there is no demonstrable active infection, the former being a potential source of the virus, but the latter...

My understanding is as follows, but I am hopeless at remembering sources, so it would be interesting what other people say: 1. Can people who are totally asymptomatic pass on Covid-19? Yes, it is possible to have and spread the virus without ever developing any symptoms. I read something...

Is it true that the placebo effect is apparent only in subjective reporting and not in objective measures? That is the placebo effect results in us feeling better and the nocebo effect results in us feeling worse without impacting any underlying condition. You might argue then the placebo...

If only this was true of the so called BPS research into ME/CFS.

If this is part of developing a White Paper, which is a stage in creating a new Act of Parliament, the UK government must have committed to following up on this consultation. Disability Rights UK is a pan disability charity set up by merging several previous UK disability organisations. It acts...

Also for men we need to add the need to be checked for prostate cancer. Medical advice should be part of making any conclusion that such symptoms are part of an individual’s ME or if they reflect a new additional condition. If a new condition, it might require treatment, or if symptoms of ME...

The ME Association, the UK all party Parliamentary group and the Scottish Parliament are doing some good work looking at Doctor/GP training in relation to ME, but so much needs doing. Also @PhysiosforME are doing important work towards training Physios. But in terms of MUS the battle for the...

I think a lot of us have some sort of bladder and/or bowls issues. For me IBS and very frequent urination, at the worst ever[y] 15 minutes, are a feature of PEM and of my food intolerances. In the past both would return to pre onset normal once any ME relapse stabilised or the PEM passed...

We had a poll on this here last December see https://www.s4me.info/threads/unscientific-poll-how-many-times-do-you-pee-in-24h.12929/