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Yup. Definitely still done @Webdog. I take it it for mine as an add-on to my anti-depressant. I developed ME a year after starting it, and I'm still not convinced it's not actually to do with my medications, so I caution everyone about messing with these chemicals, even with medical supervision...

I'm concerned for the sick people offering themselves up to have Typhoid vaccinations to prove the existence of our illness! If it can cause measurable brain inflammation, it's surely highly inadvisable for a pwME to risk worsening their health still further? There has to be a better way to...

@Sunshine3 it is so awful to be stuck like this, feeling way past help, stigmatised and getting worse. @Invisible Woman is right - look how many people agree with her wise words! If we can't cry on each other's virtual shoulders, whose can we cry on? I made the mistake of reading the threads...

And especially hard to be patient when we have no physical proof yet to counter all this bloody awful BPS, MUPS, CCS, whatever new psychosomatic label they're coming out with now! @Sunshine3 We need it as a shield as much as a route to effective treatment :cry::mad:

Thanks for the simple and easy explanation @adambeyoncelowe Really helps :thumbup:

@adambeyoncelowe Yes, thank you, thinking through concrete - definitely meant you! Low Dose Naltrexone - @arewenearlythereyet you got it right :thumbsup: Sorry for thinking it was you who too it. Naproxen is v strong NSAID. Probably does nasty things to your stomach if taken ongoing...

@arewenearlythereyet I also had horrendous side effects with carbamazepine. Dizzy, vomiting, crawling as I couldn't stand. From the second dose! But I know that it does help some people. It's such a gamble. :( Is the LDN helping you? I've read that it can lower markers for autoimmune...

Thank you @MsUnderstood! Interesting article. Most of our serotonin, the "happiness hormone" is produced in our gut by micro-organisms, so it stands to reason that knocking them out with antibiotics could result in depression, and re-colonising the gut could alleviate it. Obviously it doesn't...

But how do you know? Have you tried? Have you been tested and tried to boost what's missing? Did it help? Isn't it worth a try? I am one of those people whose life has been saved, repeatedly, by medication. Prozac from age 17 to 32, and Effexor from 32 to 43. I suffered from recurrent episodes...

I would try Flexeril before trying the SSRI medications. Taken at night, the drowsiness is useful with getting a good night's sleep! I researched Cymbalta and Savella thoroughly for my daughter who has fibromyalgia, and we decided the only 50% success rate, and bad side effect profile wasn't...

Oh, @adambeyoncelowe reminded me! Magnesium definitely helps with muscle pain and headaches! My neurologist recommended I take Magnesium Malate or Glycinate (never Citrate, that's rubbish), for my migraines, headaches, fibromyalgia and ME pain. Backed by lots of research. And def helps. I take...

@Jenny TipsforME I'm so sorry to hear that your pain is so bad. Have you ever tried muscle relaxants? I know that people have had luck with Flexeril. Are your headaches actually migraines? If so, there are drugs to help. Could they be a horrible nuisance that we never get warned about, called...

Is this the article you are referring to @Diluted-biscuit? http://kellybroganmd.com/hiv-pregnancy-pharma-abusing-women/ Feel free to disgree, of course! I agree entirely with her on Gardisil. I'm pro childhood vaccines, and I'd hope she is too, but I can't find info about that. Her info on...

@Mij and @Diluted-biscuit I posted about Dr Kelly Brogan in reference to Chris' comment, see above. She does not write about ME/CFS. She talks about the fatigue of normal people when she says the word. If it offends you that I posted such a link here, I sincerely apologise. But I honestly...

Aha! @Trish I meant @Chris not @Alvin. As Alvin is in the field, you can see why I'd be interested in picking his brain. I understand your concerns Trish. But at least you now know where this apparently out of the blue babble on this topic came from. :)

@Mij She is addressing the fatigue of NORMAL overworked, over-scheduled people there. NOT US. She makes a reference to "Chronic Fatigue" - to say, I'm so wiped, you'd think I had Chronic Fatigue... I don't see this as an attack. In that instant, she feels totally drained of all energy. She...

I'm sorry @Alvin. I mistakenly thought you were the person who mentioned this approach. I apologise for any anger/distress my tagging you has provoked. I thought I WAS asking someone to help me "discuss the validity of their approach!" Ooops. Very tired eyes. Must find who I thought it was...

@Alvin Are you familiar with Dr Kelly Brogan? www.kellybroganmd.com. She's a psychiatrist who approaches psychiatric illness via addressing nutritional deficiencies. Very interesting reading. Can you recommend any other psychiatrists who take this approach?

@sea So sorry you're afflicted too. Another one, since a child :cry:. So sad for little you,back then. :hug: I don't get an aura with mine, maybe that's why I'm spared the vomiting. Confusion is a new one to me. Ugh. Sorry to hear. Hugs.

No, oh lord, no! Woken up in the night by a migraine? @Invisible Woman I don't think I ever have. Waking up in the morning and it hitting soon after, yes. Groping for the pills, knowing I've slept through the warning signs that tell me the perfect time to take them, knowing I've missed the...