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They were the reason, in that all government funding for biomedical research stopped and all was given to psych research instead. (Eg, PACE which wasted £5 million of taxpayer money that would have been better spent on useful research by real scientists.) What little scientific research still...

Heh, yes, I remember it being called Royal Free Disease - I was a toddler at the time of that outbreak and remember hearing it referred to as that on the news and thinking what a strange name it was. (Now I'm showing how ancient I am and why I despair there being a biomarker & cure in my...

Thank you for the good explanation. I guess what it comes down to, is that the original term ME no longer means what it used to (eg, the Ramsay criteria that I was diagnosed by was used then, which is quite different from what came later: https://www.cfids-me.org/ramsay86.html), Post Viral...

This is puzzling me too. When I got ME in 1983 it was alternatively known as 'Post-Viral Syndrome' and defined as being the result of a viral infection (in my case, a heavy respiratory virus). What else is it defined by? (I know 'fatigue' has been thrown into it now, but that really is too vague...

Oh my gosh, can they not hear how stupid that sounds/is? Why not "Drinking bleach may help some sufferers from long Covid but, unless we fund research to test it, we will never know for certain." Or how about "Walking off a cliff like lemmings may help some sufferers from long Covid but, unless...

I have synesthesia, since I was a small child. I don't find that it ties up with light & sound sensitivity for me, they seem to be two separate things in my case. I have light & sound sensitivity (moderate now, was severe when I was at my most severe). But I find the synesthesia enjoyable rather...

This is a very good point. Having obtained my notes a while back, I was horrified to see they consisted almost 100% of misinformation/disinformation. They list trivial symptoms I've never had, omit important symptoms I have had, making my condition sound like no big deal. One doctor described me...

Thank you so much for your dedication to helping those with this much-neglected disease. Your work is important and very appreciated.

It's so weird how these types of articles keeping popping up since the new NICE Guidelines, I wonder if they're orchestrated by the SMC or other organisation with similar agenda? And she's a 'Specialty Doctor in Oncology'? That's very worrying. I sincerely hope she doesn't think LP will cure...

Oh my, watched it and truly feel embarrassed for both of them. Of course they disabled comments on the video. AND, YouTube has this new policy of Dislikes no longer being allowed. So that makes for a perfect little echo chamber. It's hard to understand how someone in such a prestigious position...

I think if that happened to me, I'd have to give the doctor a big lecture on the meaning of fatigue. Because it sure doesn't describe my symptoms. Whereas encephalomyelitis feels like what I experience, even if there's no routine lab test result to prove it.

Wow. The author, Dr Bannister, was my consultant at Royal Free Hospital in the 1980s after I got severe ME in 1983. My GP had referred me to Dr Melvin Ramsay there, under the impression he was still working, but he had retired and it was Dr Bannister who took the case. She was the only doctor I...

I do know what you mean, they feel they need to couch things in vague terms unless/until they can get some lab test result that shows something really blatantly obvious, which unfortunately never happened for me. It would have at least been better, though, if what they quoted me as 'thinking'...

Having seen my NHS notes a while back, it's full of 'She thinks she has [such and such]' or 'She feels [such and such]'. Why not simply 'She says'? It seems intended to belittle the patient's intelligence and credibility, and I can't help wondering why they do this.

Am completely bewildered as to how these authors think there's a link between serious viral illness and kleptomania. Very off-the-wall.

Now, that's interesting. Would ME/CFS be considered a physical deficit? If so, all those newspapers using stock photos of young healthy well-groomed models sitting yawning in front of their computers as a depiction of ME/CFS, could land in some licence-use trouble? Maybe that might result in...

It was Wessely quoting a Mayo Clinic doctor:

Thanks for the Twitter link for Gamers For ME, will follow. Yes, Fallout NV had some of the best and most memorable characters ever. It was an incredibly BIG and fleshed-out game especially for something made in such a short time as it was. LOL, yes, Tabitha was certainly a great radio host. I...

The term 'gaslighting' isn't used in the films. I'd guess that the term was just later derived from the title.

And the 1944 one was a remake, of the original Brit film made in 1940. The 1940 one is in public domain, so you can watch it on YouTube and see the gaslighting effect in all its glory: