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  1. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    But there is a very specific recommendation for CBT in the Nice 206 guideline which states it’s not curative and not to state that their beliefs are abnormal (I’m paraphrasing). So there is a form of CBT which could be useful. There are, as we know, forms which are harmful. So to go back to...
  2. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Don’t worry, he’s consistently repeating his rather dull story.
  3. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He has mentioned in his earlier blogs that she’s had ME for a number of years. He wrote about being sent a picture of a gun by a disgruntled person. I’ve had worse threatening emails doing internet dating tbh. Again, omitting the frequent exercising he was seen doing in Liverpool, when the...
  4. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    My point is that whatever the style of therapy, or name, doesn’t matter. it’s how it’s used. If I were to paint a car with gloss, it would give a terrible finish. It’s not the paint’s fault, it’s mine for trying to use it where it won’t apply, and not using the right type of paint. “Gloss...
  5. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    I don’t know but I suspect that CBT can assist in many difficult circumstances. From being diagnosed with a chronic disease, to being put in prison, made bankrupt, homeless etc. I think the label is a problem. Replace “CBT” with “psychotherapy” or “counselling” or talking therapy”, it’s just a...
  6. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I saw a good post on social media today. I think a pwME. Along the lines of- Government wants me to work. Log in to DWP Gov Job site. Used the filters to find disability confident employers>work fully remote/from home>part time. There are 7 jobs advertised. How are we all going to get jobs if...
  7. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    GP’s are overworked and underpaid, too. Fit Notes were supposed to come in with some sort of government-run Occupational Health type service who would assess people on behalf of the workplace and suggest adjustments…never happened. Just left to GPs.
  8. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Not the way they’re thinking of it, I can bet you it involves an app and exercise…
  9. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Own goal! Also if GPs are signing too many people off and it’s wrong, why isn’t he telling his colleagues and professional body to act appropriately? instead of tattle tailing to the press. Honestly you don’t even need a GCSE in Media Studies to see what’s happening here… In addition, I think...
  10. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Whaaaaaaattttt!?!?!? Im not reading any more. They can get in the bin.
  11. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    From what I understand stand, they will- Increase UC for everyone claiming, from about £400 per month to about £775 per month Get rid of the WCA assessment (with its different criteria and points from PIP) Merge LCWRA and LC to form the “health group” and receive the “health” payment on top...
  12. MrMagoo

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Bizarre article in the independent about Chronic Fatigue Syndrome. I guess someone just copied an old press release from 2009...
  13. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    They actually looked annoyed at my tribunal when I said I didn’t drive (never took the test) and didn’t have a blue badge (don’t drive, don’t get driven anywhere except the supermarket, which has a car park). I guess these are the usual areas where they “catch people out” and I accidentally...
  14. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I agree, my language and reasoning and citing of the law were brilliant, but they still found (ridiculous) ways to justify their decision.
  15. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    My point was that I think this is the only illness where you have to stop doing things before they make you unwell (induce fatigue or PEM). Benefits aren’t set up for that. Nothing is, really.
  16. MrMagoo

    PEM discussion thread - post-exertional malaise

    I think there is a lot of masking involved. We already know that autistic women often “mask” to fit in, women in general are told to put other peoples feelings/comfort/needs ahead of their own. Mix that with a “majority female” disease (which it may not be, men could be under diagnosed but it...
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