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This might be side-thoughts @bobbler but what I’ve been thinking about benefits is along similar lines - it’s hard to get across the cumulative effects and the rolling PEM. And there are none so deaf, as those who will not listen. The other part of the cumulative/rolling PEM is this - visible...

Mine are near my ovaries but I can tell it’s not them! Ovary pain is very specific lol.

Yeah that’s not a thing any more. I guess having (most) scores being an even number helps because 8 is the first threshold.

I get sore lymph nodes in my throat and near the groin, very occasionally in the armpits. The body has lots! They feel tender to touch but don’t usually qualify as “swollen”.

3 points only exists in “help getting in or out of the shower”, apart from the 1 point for meds, the others are all in multiples of 2.

Yes they will be abolished, because it seems they might have abolished the LCWRA payment. Therefore you don’t need to be assessed as to whether you’re LC or LCWRA as you’ll automatically go into LC group and receive the lower LC rate, and have to prepare to find work. Unless you’re severely...

No, they’re not abolishing “unable to work” as a select few severely disabled will receive benefits and won’t need reassessment. I’d bet my last Penny that ME/CFS won’t be in that group. They’re making everyone else join the “prepare for work” group, and paying less UC top up that way. I’ll...

This is the rule, that they don’t follow! You can’t make sense from this nonsense. There’s even specific guidance on how to award points if there are two different periods of the day where ability varies. They just ignore it and say you’re fine.

In daily living all the categories are scored 2/4/6/8 (except taking meds which starts with a 1) 2 is least disabled and 8 is most. 2 generally means you need an aid or adaptation. So I guess they’re doing away with all the 2’s on the basis that you can manage by using an aid, so no ££££ for...

I understand this Sasha, hence why my whole submission re-iterated this fact. if you could convince the assessors and the Tribunal panel and Judge of this, I’d be grateful as they’ve said I’m quite able to wash, cook, etc all the live long day.

yes I have a lot of 2’s in Daily Living (despite being bedbound for the majority of the day due to the fatigue, and being unable to do anything reliably for most of the day) it is a worry for me. Although I should get at least 4’s on some. It’s their own stupid rules that if you can’t do...

See I read somewhere that they said jobless people are claiming additional benefits because Universal Credit isn't enough to live on. So they are going to increase Universal Credit but decrease the extra benefits, so people don’t do this. Now that may or may not be true, but it makes a little...

Certainly explodes conventional wisdom. In a dangerous post-facts, post-expert, post-truth way.

ME CFS Data Sloth also works

Off topic but ME/CFS Data Sleuth would be a great name!

Whatever you show them or tell them, they ignore and argue black is white and the moon revolves around the sun.

I’ve never actually been assessed face to face for PIP, and I only had old diagnoses when I got it first time round. They seem quite content to make up their imaginary interpretation of what I wrote/said without seeing me, so I believe they can do away with the whole “ nurse-led assessment”...

Why would it be recent? I still have the illnesses I was diagnosed with in 2011

Yes - we don’t want a big benefit bill, we want people to work. Ok what about disabled people who can’t work? No they’re fine it’s the other ones, you know, taking the Mickey. I wish they’d do an NHS England and delete all the stupid “assessments”. You just write in and tell them what’s wrong...

Is it just me who is finding the twists and turns skewing the logic? They want to freeze/reduce/reform PIP because people aren’t working/being “written off” yet PIP isn’t means tested, and many people on PIP do work. They want to reduce/reform LCWRA which is paid to those too ill to work...