More on this theme, just published.
https://www.nytimes.com/2024/05/02/us/blast-mortar-brain-injury-military.html?unlocked_article_code=1.o00.C9Ez.p8wkhMbzmwjx&smid=nytcore-ios-share&referringSource=articleShare&sgrp=c-cb
As someone repeatedly misdiagnosed with FND, and having been hostile to the diagnosis (with good reason), i find the comments from FND patients quoted above very sad and somewhat distressing.
I wanted to add that I was diagnosed with high blood pressure in recent years and at no point have I had any doctor say anything about any possible cause.
“Er…so…erm..FND is caused by lots of things…or everything….or maybe nothing. I dunno. We dunno. BUT we are confident we know what causes it and how. Can I explain that position? No. Now…can I interest you in my expert, evidence-based diagnosis of FND - wait, why are you running away?”
If FND...
Has anybody else listened to this yet? There’s a lot in there that is revealing.
I think we all can see what’s going on here and the problems with this approach.
BTW side note and PSA: I got these transcripts from the Apple Podcasts app.
You may not be aware that they recently updated the...
This study is one that addresses the above point:
Insights From Invasive Cardiopulmonary Exercise Testing of Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
https://journal.chestnet.org/article/S0012-3692(21)00256-7/fulltext
This study is discussed with some excerpts and...
It is not used to indicate that via the mechanism of the dysfunction of the autonomic nerves that control the constriction of veins (constricting insufficiently), leading to reduced return to the heart and another dysautonomic feature causing reduced blood flow to muscles (via something called...
A lecture on FND by the guest on the above podcast, the neurologist Dr Matthew CL Philips.
This is also another absolute goldmine. I cannot urge strongly enough that anyone interested in this subject both listen to the entirety of the podcast and also watch this lecture.
So many fascinating...
I just wanted to point out a few things that go beyond me reacting to your quote, and to look at the podcast itself.
Firstly, the podcast is available n from all the usual podcast libraries like Apple Podcasts or Pocket Casts etc if you want to download it and listen to it properly...
If…sick people…tell you the ways in which they are sick….you should immediately conclude that it’s all in their head.
Ah, yes. Yes of course. Perfect. No notes. This is the very height of the medical application of the scientific process.
I can’t see how this approach could ever lead to...
Just incredible, really.
But for anyone from the outside who is sceptical about how astonishingly sloppy and unscientific diagnostic practices (and how casually doctors fall into them ) frequently are, this would serve as a great clear example.
If anyone harbours doubts that FND diagnoses are...
I got really irritable when I saw that Jon Stone and the FND crew had become part of this story back in 2021.
I knew, of course, that psychological theories had been floated to explain this from the beginning of it being publicly known.
Not surprising at all of course, but I learnt the hard...
Yes and that’s a very important point but even then it doesn’t get us over the line to where we want medicine to be, because using that language still doesn’t exclude the possibility that all known organic pathology hasn’t actually been tested for or tested for appropriately.
This is why just...
Whaaaaat? Say it ain’t so. I simply refuse to believe this could possibly happen.
But seriously this is an infuriating account. It’s also an invaluable example, pure gold.
The map is not the territory. That line always comes back to mind for me.
You don’t know the land by looking at a map of it. Doctors need to understand what they are seeing and what they are not.
Doctors are not going to be able to practice good medicine by looking at maps (particularly...
Lots of people on the Small Fibre Neuropathy (SFN) Facebook group I’m part of have received an FND diagnosis at some point in their journey.
Some of these people have got confirmed SFN and are recounting this earlier phase, some are still searching for proof they have SFN - but all have SFN...
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