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Oh good. Is that only the main study, with the WASF3 finding in a separate paper?

I told Mom that. People stopped seeing him because it doesn't work, and he may have assumed they recovered. He gave an anecdote about someone in their mid-20s who was a high-level table tennis player. He got ME, saw him, eventually completely recovered and returned to playing ping-pong even...

Autoimmune disease is famous for creating tons of vague symptoms. They're bound to score higher on symptoms people with health anxiety worry about. The "somatic symptoms scores" are clearly biased, but nobody has enough critical thinking to consider that.

Yes. Got G93.32 (ME/CFS) on my chart. He's ordering strange and specialized tests I never heard of before, which could supposedly confirm my condition. Besides the urine tests, there are blood tests. Cleveland Clinic is a notch above anything I've seen before. It shows in the little things...

C'mon, publish it!

Yesterday I visited the Cleveland Clinic for the first time. Some aspects utterly impressed me and other had me puzzled. My first appointment was with an internal medicine doctor. It started out well. I was seeing a doctor who knew what ME/CFS was for the first time in my life. He told me I...

News and experienced related to Cleveland Clinic, one of the most prestigious hospitals in the United States.

In their analogy, ME/CFS and long Covid should be viewed the same way. They're related, not identical, and aspects of pathology and treatment may be shared between them.

Worth every penny.

I didn't notice the word "encouraged" there. In that case, it's just PEM-washing. (Saying they're managing PEM safely without actually doing anything). I hope I'm wrong. The only ethical way to conduct an exercise study on LC patients is to screen for and exclude people experiencing PEM.

They need new guidance developed in collaboration with patients, not 13 year-old trash with small updates from the NICE guidelines.

I agree with @rvallee here. Analytical methods (directly measuring particulate filtration) beat empirical methods (in this case, likely with many weaknesses) every time.

Key passages Google translated: The rest is an amenable discussion of ME/CFS (one heading reads, "Recognized as a physical illness since 1969, but still psychologized") and overview of the new organization:

Wish people gave accounts of how they reacted to the gaslighting. If someone treated me like that I'd explain the scientific consensus on ME, and walk out. Once a doctor tried to blame my symptoms on inactivity, and I straight up roasted her in a MyChart message: It's my policy that whenever...

Encouraging. We'll see whether screening for PEM is properly executed. It would be far better to simply exclude people with PEM. Assuming it's actual psychological support and not ME-CBT, it's a bandaid on a bullet hole.

IRL = In real life

Next up: The wetness of water among rivers in Switzerland, 2023, Smith et all. Jokes aside, no matter how obvious it already is to patients, it needs documented in painstaking detail.

The DSQ is notorious for poor specificity. It's a screening tool at best. Thus I doubt the validity of this study.

There's plenty of diseases that fluctuate over time. Nobody in the US talks about the Lightning Process without scoffing. The overall situation in the US isn't great. Average doctors are still quite bad but the highest levels of the ME/CFS discussion are almost entirely biomedical. We have Dr...

Ah, I thought it was familiar. Good to see this excellent piece getting carried elsewhere.