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  1. V.R.T.

    News from The Netherlands

    The unsaid thing in all this - we are not as deserving as those with 'proper' diseases Also I wonder if there was any ranty person esque lobbing here. It's such a bizarre decision by any logical measure but very typical of MECFS neglect.
  2. V.R.T.

    News from The Netherlands

    The example Den Dunnen gave was daratumumab
  3. V.R.T.

    News from The Netherlands

    It's absolutely outrageous but perhaps useful as an example of just how illogical the neglect of MECFS is.
  4. V.R.T.

    News from Germany

    Indeed.
  5. V.R.T.

    News from Germany

    Brilliant title.
  6. V.R.T.

    USA: Mount Sinai PACS clinic and Dr David Putrino

    'Significant'
  7. V.R.T.

    USA: Mount Sinai PACS clinic and Dr David Putrino

    I share your skepticism on the therapy but I assume it means they have unblinded and are writing/have written the paper? Or am I missing something?
  8. V.R.T.

    USA: Mount Sinai PACS clinic and Dr David Putrino

    Ah, that makes sense! Thanks for clearing that up
  9. V.R.T.

    USA: Mount Sinai PACS clinic and Dr David Putrino

    I don't think thats the one, the company of this device is called Fareon. Thanks though!
  10. V.R.T.

    USA: Mount Sinai PACS clinic and Dr David Putrino

    Anyone got any info about the trial discussed in this thread? Putrino is reporting improved cognition for LC patients in a triple blind trial of a new magnetic device that targets neuroinflammation.
  11. V.R.T.

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Really hoping that turns up something interesting.
  12. V.R.T.

    Elimination diets

    My prodromal onset coincided with massively worsened hangovers, to the point that I couldn't function much at all the next day, and sometimes the day after. The way my body responded to alcohol seemed to change. Unfortunately it also made me feel much better while I was drunk so I ended up...
  13. V.R.T.

    SIBO - Small Intestinal Bacterial Overgrowth

    I was diagnosed with SIBO last year. For complex reasons inc. the specialist who diagnosed me pushing loads of alt med treatments on me and the GPs refusing to prescribe the correct antibiotic I have not started treatment yet. My GI symptoms are bad. I will spare you all the details! How solid...
  14. V.R.T.

    Prevalence of Post-COVID Symptoms Across Variants of Concern and Follow-up Periods: A Systematic Review and Meta-Analysis, 2026, Lugtu et al.

    I have come to the conclusion that it's literally all bullshit. All of it. As in: there is no such thing as a psychosomatic illness. After the destruction they've caused, all the obfuscation, all the fudged and fraudulent data, I really can't see any good reason to think there are any illnesses...
  15. V.R.T.

    ME and PEM recovery via Cyclophosphamide (personal story)

  16. V.R.T.

    Impaired VLCFA-peroxisome-mediated intestinal epithelial repair causes gastrointestinal sequelae of long COVID, 2026, Wang et al.

    If this is true I would be very happy as I have been absolutely plagued by GI symptoms since my suspected covid infection
  17. V.R.T.

    Impaired VLCFA-peroxisome-mediated intestinal epithelial repair causes gastrointestinal sequelae of long COVID, 2026, Wang et al.

    Bold claim
  18. V.R.T.

    Spontaneous, persistent, T cell–dependent IFN-γ release in patients who progress to Long Covid, 2024, Krishna et al

    https://meassociation.org.uk/2026/02/news-medical-study-identifies-antiviral-protein-ifn-%ce%b3-as-a-potential-biomarker-for-long-covid-fatigue/ Shepards comment here implies Rosetta Stone will try and replicate this finding
  19. V.R.T.

    Trial Report Plasma cell targeting with the anti-CD38 antibody daratumumab in ME/CFS -a clinical pilot study, 2025, Fluge et al

  20. V.R.T.

    Spontaneous, persistent, T cell–dependent IFN-γ release in patients who progress to Long Covid, 2024, Krishna et al

    Has this study only just been published then? Bloody hell. Still want to know what they're up to now
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