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Putting the quote about 'give it a go' in context: If the 'give it a go' activities are indeed things like learning to practice 'quality rest' and finding ways to cope with stresses, it could be useful and positive. But just saying it that way makes it sound like it could mean anything...

I think it would be perfectly reasonable to conclude, from the information we have to date, that the whole process was set up to shut us up for as many years as possible and keep the 2019 review in place. From the outslde it seems to be a complete farce that has made appalling use of the...

There was mention at the beginning of collecting samples from people with LC,ME/CFS and Lyme, but all the later talks seem to be about LC. I think they've borrowed 'trickle down economics' where rich people getting richer is supposed to trickle down to making everyone better off. Only it...

Even that is not yet clear, since we haven't seen even a protocol, let alone a review. There is some patient/carer input built into the process, but the review writing group is dominated by Cochrane insiders and others of unknown views.

From the FAQ's last updated June 2021 https://community.cochrane.org/organizational-info/people/central-executive-team/evidence-production-methods-directorate/stakeholder-engagement-high-profile-reviews-pilot-1 Edit: There's more detail about this under the heading 2. Editorial arrangements...

My understanding is that the new review, if it is ever produced by the writing group and advised by the IAG will then go through the peer review process normal for Cochrane reviews, and if it passes peer review and is accepted by whichever Cochrane editors are tasked with deciding, it should be...

My understanding is that the new review, if it is ever produced by the writing group and advised by the IAG will then go through the peer review process normal for Cochrane reviews, and if it passes peer review and is accepted by whichever Cochrane editors are tasked with deciding, it should be...

I had no idea what a subject access request is, so I looked it up; I can't see what personal info about any of us would be of interest to Cochrane and they might hold.

I don't think mental illness has anything to do with looking 'a bit odd'. People suffering from a whole range of mental illnesses look just like the rest of us, from my limited experience.

The usual conclusions: the treatment didn't work. And with a bit of cherry picking they managed to find one slightly statistically significant outcome if you ignore correction for multiple comparisons, so of course they conclude the treatment is promising and more research is warranted. Ridiculous.

I think it could be pointed out to the Charity Commission that Cochrane's methodology of basing recommendations only on clinical trials, and not taking into account data that contradicts the findings, and prioritising review teams egos over public health, is contrary to Cochrane's charitable...

That's a good question, Duncan. The masks review fiasco has reached other media, but ours is very unlikely to. I think the Charity Commission should be informed, and it would be good to get some wider cut through among medical media, but I don't think the general public media is a good target as...

For an organisation set up to provide up-to-date systematic reviews on treatments for all diseases, all they really are is a publishing house that specialises in systematic reviews. But they are also a UK registered charity, whose stated aim is primarily about the "protection and preservation...

I disagree with you Bobbler about confusion over the old 2019 published review and the planned new one. They have been clear all along that the process is intended to be what should be a straightforward series of steps: I. the 2019 review has gone through peer review and been published in...

I don't think non Government bodies like Cochrane can be subject to FOI.

Very mild again. Pretty much the same as previous times - about 2 days of sore arm, increased ME pain and slightly raised temperature (about 1 degree C above my normal). I took some paracetamol.

Errghhh! Wash your mouth out!

I sympathise if they have non disclosure agreements, but as volunteers working for a charity (Cochrane) on non sensitive material that's all in the public domain (research papers etc), I don’t see how any non disclosure agreement can be legally binding. We’re not asking anyone to disclose...

How very trying.

Exactly. Though they are taking their time reaching extinction, unfortunately.