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A review from Serbia from 2024 that supports the use of GET and CBT for CFS. Thread: https://www.s4me.info/threads/effects-of-graded-exercise-therapy-and-medical-care-on-chronic-fatigue-syndrome-2024-zli%C4%8Di%C4%87-et-al.49301/

This review is from 2024, so not so new. It is from Serbia, where they seem to have some relatively stronger patient advocacy going on, they have a patient organization, etc. But they also seem to have their own detractors.

Tamara Zličić, Darinka Korovljev, Tijana Šćepanović, Ivana Milovanović Abstract Purpose: Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME) is a complex condition with debilitating symptoms that significantly impact individuals, particularly those in the working population. This...

No, I don't know of any. I asked Gemini about this as it can read the Ukrainian-language internet. The answer is negative. Here is what it said: I also asked it about patient advocacy in Ukraine: I'm not surprised by this if this is indeed the case. It was exactly the same here in Hungary...

I have seen this, that S4ME is cultish, a couple of times now on Reddit, usually in the cfs subreddit. Almost always stated by people who came here with rather outlandish theories or doing "their own patient-led research" with the worst possible methodology and received some criticism, naturally.

Same here. He seemed to be quite sure it was glandular fever but also immediately sent me to do the test for EBV + CMV.

Full title: A Continuous Oral Regimen of High-Dose Cromolyn Sodium Is Effective for Some Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Patients With Mast Cell Activation Syndrome Maritsa E. Christoforou • Linda C. van Campen • Frans C. Visser • Carlton K. Lee • Samantha L. Lemmon...

Full title: Immersive virtual reality intervention to enhance cognitive-affective neuropsychological functions in post-COVID-19 condition: Research protocol and a case report Kinga Nedda Pete, János Tamás Varga, Zsuzsanna Valachiné Geréb, Orsolya Gőbel, Cecília Sik-Lanyi, Veronika Müller...

"We are providing an unedited version of this manuscript to give early access to its findings. Before final publication, the manuscript will undergo further editing. Please note there may be errors present which affect the content, and all legal disclaimers apply." Daniel Missailidis...

I'm not sure if anyone is still interested in this but anyway: I got the new Moderna vaccine earlier this week. I only had Astrazeneca and Pfizer before, with normal but pretty strong side effects (feverish, ill feeling, very fatigued etc). I asked AI about how the side effects of the new...

Anna Szente, Ákos Arató, Husamalddin Ali Alhour, Gábor Perlaki, Gergely Orsi, Szilvia Anett Nagy, Eszter Áfra, Barnabás Dudás, Dalma Tényi, Péter Barsi, Norbert Kovács, József Janszky & Gergely Darnai Abstract The long-term effects of coronavirus disease 2019 (COVID-19) are more pronounced...

Carruthers is the CCC.

Camille L. Birch, Brandon M. Wilk, Manavalan Gajapathy, Shaurita D. Hutchins, Gurpreet Kaur, Donna M. Brown, Tarun K. K. Mamidi, Kathleen S. Hodgin, Alp Turgut, Jarred W. Younger & Elizabeth A. Worthey Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a...

Fukuda.

Sławomir Kujawski, Hanna Tabisz, Karl J. Morten, Aleksandra Modlińska, Joanna Słomko & Paweł Zalewski Abstract Background An artificial intelligence (AI) pipeline was used to differentiate patients suffering from Chronic Fatigue Syndrome (CFS) from healthy controls (HC) based on...

I don't know, I mean take Steve Jobs from real life for example, who outright rejected medical treatment for quite a long time in favour of all kinds of woo - he even talked to a psychic before realizing that he had made a mistake. Personal beliefs can be quite strong and sometimes defy logic...

Joshua Leisk's work is impressive and has led to some great achievements: now I have an even lower opinion of his activity, which I didn't think was possible before. Congrats!

I just saw this Hungarian study and thought it was interesting. It is not about EBV but cytomegalovirus (CMV), which is very similar and closely related to EBV and can also cause mono/glandular fever (although EBV is responsible for 90% of the cases, according to Wikipedia). Large-scale...

Not ME/CFS but the Knives Out movies (the ones with Daniel Craig as the detective) are very popular so I thought I'd share. In the latest film, Wake Up Dead Man, there is a minor character who suffers from chronic pain. It is mentioned that it is a mysterious condition as doctors couldn't find...

Xinxin Cheng, Wenkuan Wang, Tingting Xu, Yanjie Wang, Xina Zhen, Wenxuan Man, Shuo Gao & Yonghui Yin Abstract To investigate differences in gut microbiota composition and short-chain fatty acids (SCFAs) metabolism between patients with Chronic Fatigue Syndrome (CFS) and Healthy Controls (HC)...