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    Video: Postural Biomarkers as Outcome Measures for ME/CFS, Suzanne Vernon, PhD, 2020

    They actually say that one of their goals is to be able to objectively measure the efficacy of a given treatment in a clinical trail, I guess as a side effect of accurately measuring upright posture for extended periods of time. Not sure how that compensates for soldiering through, or...
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    Video: Postural Biomarkers as Outcome Measures for ME/CFS, Suzanne Vernon, PhD, 2020

    Yes, hence my question as to whether they are actually gauging the impact of POTS, ie, it's a 10 minute lean test. Only if they can distinguish ME/CFS from other conditions. Even then, what are they objectively capturing? Signs that suggest a proclivity or disinclination for or against being...
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    Video: Postural Biomarkers as Outcome Measures for ME/CFS, Suzanne Vernon, PhD, 2020

    Are they conflating POTS with PEM? Do they even mention PEM? POTS is just a symptom/manifestation in some ME/CFS patients; not all pwME suffer from it, and it occurs in non-ME/CFS peeps as well.
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    Video: Postural Biomarkers as Outcome Measures for ME/CFS, Suzanne Vernon, PhD, 2020

    Ok. The cynical me wonders, though. Most research endeavors fatigue-related seem to have dubious effects on our community, at least historically. A) Other diseases/conditions have PEM, or PEM-like similarities. B) Not sure researchers as a whole know how to induce PEM reliably. Most don't even...
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    Video: Postural Biomarkers as Outcome Measures for ME/CFS, Suzanne Vernon, PhD, 2020

    Another fatigue study? How will they differentiate between any other chronic condition that involves fatigue? Are couch potatoes included?
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Not really clear on how credible this statement is, at least in terms of POTS. I thought there were tachacardia and or/BP change requirements to qualify for a POTS diagnosis. I seem to remember that there are tests for MCAS as well, but I could be wrong; my memory is suspect. But I'm pretty...
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