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  1. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    And when it comes to the comments on clinical matters such as ME tase people seem to be up to their eyeballs in bullshit. It doesn't even seem to make any sense, as others have pointed out. That Greenhalgh has wanted to tag along with this says it all really.
  2. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    Philosophers spend eons arguing about what cause is but only because they insist on using language that nobody with common sense would want to use in the context. Causation is a very subtle and complicated business but as applied to science it is usually reasonably easy to see what is meant by a...
  3. Jonathan Edwards

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    That seems to confuse two different issues. Whether or not practitioners preach CBT has nothing to do with whether or not they have time to do trials. I know practitioners who recommend CBT but also make use of dog therapies. The issue of having time to do proper trials before handing out...
  4. Jonathan Edwards

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    Various members are suggesting that patients are able to make 'adult' rational decisions about this drug. But as far as I can see even the authors of the study fell short on that. How on earth are patients going to know the odds? How is someone with ME going to know the right choice here if none...
  5. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I can't quite make out what he is wanting to say. Is this a proposed project - or a funded project? What project is it? What are the four pillars, one of which is social?! I am intrinsically sceptical about tweets about people being excited for someone else's research, or maybe plans for...
  6. Jonathan Edwards

    Psychological therapies. Discussion thread.

    Thanks for the questions @Joan Crawford. Let me try to answer by taking your post a bit at a time. I understand that there is a way to provide psychological support that does not overreach, but I wonder whether one can really say overreaching is not mainstream? I have no idea of the...
  7. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    That was true in 1980 in my speciality but not since, at least in the UK and probably Europe I think. Everything has to be based on substantive evidence. Choices remain open if you have several equally grounded options to pursue and the way forward is always based on what the patient feels is in...
  8. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    I don't think there is that much difference to be honest. Biophysical doctors have their patter for persuading patients too. Across the board a gambling approach to medicine has almost certainly done more harm than good. I think painting the BPS people as bad in a way that the biophysical gamers...
  9. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    What these people do not appear to understand is that evidence of all sorts is regularly used in working out causation in disease and treatment. I did it all the time. But each sort of evidence has a different level of reliability and there is NO argument for reducing standards of reliability at...
  10. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes, I remember why I am now on this forum.
  11. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I'd be interested to get anyone's thoughts on whether this sounds appropriate for what is supposed to be a multidisciplinary assessment and rehabilitation service. This type of therapy is mainly used for substance abuse. The CF Service told me pts w/ fatigue are referred to them Sadly I think...
  12. Jonathan Edwards

    Best ME charity to support on Amazon Smile?

    Both MERUK and MEA make good decisions about use of funding. Important projects survive because of these two charities and as far as I can see they work side by side in a constructive complementary way. They approach things in slightly different ways, which is good. In reality I suspect that...
  13. Jonathan Edwards

    UK - NHS England online tool and clinics for long Covid.

    Apparently, motivational interviewing is talking to people nicely, that's all. https://www.rcn.org.uk/clinical-topics/supporting-behaviour-change/motivational-interviewing And What is the evidence that MI works? Clinical trials have shown that patients exposed to MI (talking to people nicely)...
  14. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A truly dreadful piece. Basically it says all sorts of self-contradictory things that take nobody anywhere but emphasises that general practice is terribly important - including claiming patent rights over Long Covid: Management of people with long COVID is the responsibility of general...
  15. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    Maybe there should be a prize fir speaking power to truth. Plenty of candidates around.
  16. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    Putting in the 'in moderation' is irrelevant. Bewley misses the point completely. I was recently told that to stay free of stroke I needed to exercise until I was really short of breath and had a racing heart. In other words it would only work if more than 'in moderation'. It had to be full on...
  17. Jonathan Edwards

    Psychological therapies. Discussion thread.

    I was taught as a medical student that you would not expect psychotherapy to benefit major psychiatric illness. Major psychiatric illness involves irrationality and there is not much point in trying to address irrationality with rational argument - which CBT seeks to do. From personal experience...
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