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[moderators, this post is intended to be more general than this paper, BUT also to refer to this paper. perhaps a new thread with links?, but idk which forum. please move this post at your own discretion if you can/want.] what is a good, scientific, well-defined, phenotype-oriented...

does it mention omalizumab, ige, basophils, histamine, mast cells, any possible causal role of allergies or allergy-like things, any dao stuff, angioedema, or antihistamines?

i cannot follow forum or threads adequately but: is this adequately aware of disease progression? and adequately aware of levels of severity? unless i am missing something, which is likely given that i only saw this post, this is unsuitable. for context, on teh scale that has moderate =...

as a very rough tldr, for anybody wondering, of my very rough and probably wrong understanding of it, it works via a rituximab-like mechanism, except against ige. it also affects basophils and mast cells. it is used for allergy-like / histamine-like conditions. even nasal polyps. side-effects...

I tried low-dose naltrexone (LDN) for a month, but had constant nausea and several episodes of prolonged severe nausea, vomiting, delayed gastric emptying, sweating, diarrhea, and worse IBS. In one episode, I needed to vomit for about 7 hours but could not. Strange regurgitating. When finally...

[idk if this note shoulodbe a separate thread but this paper is a good example.] advocacy is, incontrovertibly and significantly, self defense. i don't think we should ever lose track of that. and as a principle of advocacy strategy, i like it when we address, after careful consideration...

the nih could perhaps stand to prove tangibly that it is doing something meaningful, has a clue about the disease AND acts according to that clue, etc. even minimal accommodation of those who are routinely, casually, widespread-ly, and systematically excluded, even with a mere "we'll work...

seems likely legal action with significant consequences both to accused and for release of information can speed progress. when your colleague gets due-process-legally-nailed, it might make you pause before continuing. or rat out.

The Rise and Fall of the Psychosomatic Approach to Medically Unexplained Symptoms, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Free fulltext (preprint) https://psyarxiv.com/jpzaw/ Citation: David F Marks. (2022). The Rise and Fall of the Psychosomatic Approach to Medically...

https://pubmed.ncbi.nlm.nih.gov/24060274/ Abstract Background: It remains elusive how allergic symptoms exhibit prominent 24-hour variations. In mammals the circadian clocks present in nearly all cells, including mast cells, drive the daily rhythms of physiology. Recently, we have shown that...

i am trying to find infgormation on maximum doses. are there any resoures tat describe h1 and h2 inhibitor every 2h? the only thing i found was hoffman saying that they can be increased to 3x the otc rec dose, without specifying.

tldr if you get covid but are unvaccinated vaccine might help prevent lc. hope i got that one right. === Source: WebMD Date: December 7, 2022 Author: Lisa O'Mary URL: https://www.medscape.com/viewarticle/985222 Vaccines are effective against Long COVID: Study...

The Supreme Court directs the Ministry of Health and Family Welfare to consider people with ME/CFS Dec 2022 from: Dr. Marc-Alexander Fluks Source: Medical Dialogues Date: December 6, 2022 Author: Barsha Misra URL...

i am confused. it probably all makes sense though. prob just me. in the state of texas, there is a rumored needed killin' law. if there is a paywall, it needed removin'. seid or something said somehting like it is a positive diagnosis, not a diag of exclusion. contradiciton. the word...

l reuteri is in at least one supplement. there is an mepedia page.

> litigious possibly an industry has to GET sued, and significantly lose, for some to take harm seriously? [eta in general, not this industry only.] i'd like to see a focused legal charity. criminal too.

> I've also started to doubt that PEM is a reliable indicator of having ME/CFS. can we assume you mean that if you have pem, you might not have me/cfs? are there e.g. rare diseases, with objective signs, that have the enormous number and diversity of symptoms that can occur in a single pwme...

to me this stuff is really complex but consequential. the average doctor including specialists seems not capable of dealing with it, and it isn't covered well in medical literature. confusing.

> I feel completely confindent in stating that we will not be on any list making us vulnerable/needing antivirals on the merits of having ME alone, until such time as a biomedical test is found which shows irrefutable proof of an aetiology which would mkae us more likely to develop severe/life...

there is one place reformers [incl medicine] do not meaningfully go: corruption. there is one thing i have never seen them meaningfully accept ever: collective responsibility [not for action t4 to my knowledge. not for andropov's massive sluggish schizophrenia industry it seems -- they...