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  1. Samuel

    Covid-19 vaccination experiences

    i can't figure wnough out either and it is getting serious as i am keeping down dental abscess with abx for a long time now. i want v. but i can't find out enough and my doctor does not seem to know about m.e. or my angioedema. > Check c19vaxreactions.com the mRNAs seem much worse making over...
  2. Samuel

    Immunoglobulin signature predicts risk of post-acute COVID-19 syndrome, 2022, Cervia et al

    is there any research of any type on worsening of pwme after infection? also, is there any research on igg subclass profiles for pwme? anecdotally i notice reports of 1 and 3 low.
  3. Samuel

    Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022)

    basic questions what kind of endothelial dysfunction is found or hypothesized in m.e.? what are the signs and symptoms of endohelialdysnction thtat might befund? raynauds? o2 transport? angioedema? does taking vit d3 inrease no or must it be sunlight
  4. Samuel

    Complaints from patients with [FND]s: a cross-sectional UK survey of why patients complain and the effect on the clinicians..., 2018, Bolton

    checks and balances are gone when journals cognitively reframe lower backs. also, sick folk should never have to take avice like "don't go to neurologists becaue they will ruin your medical re3cord" or "don't tell anybody you have m.e." or "keep trak of which symptoms are ok to tell a doctor"...
  5. Samuel

    Can the long term using of pregabalin in fibromyalgia affect the choroid and retinal nerve fiber layer? 2021, Biçer et al

    i had double vision for a few weeks after my last dose. i'm guessing that is unrelated to this.
  6. Samuel

    Review Systematic review and meta-analysis of the prevalence of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), Eun-Jin Lim et al, Feb 2020

    i get confused by this diagnosis stuff. yet iom seems not. === when the iom flowchart was published, i thought it might or might not be accurate and accessible, but would a physician think to use it? does it jump out when you have nearly every symptom on the chart? i thought no at the time...
  7. Samuel

    Covid-19 vaccines and vaccinations

    is this a reasonable option and a reasonably safe one for pwme whose doctors have told them taht v is risky?
  8. Samuel

    Mild respiratory COVID can cause multi-lineage neural cell and myelin dysregulation, 2021, Fernandez, Monje, Nath et al

    what is a good definition of brain fog? my symptoms include extreme crippling versions of some aspects of executive dysfunction. which itself gets confusing compared to autistic inertia and non-hyperactive add. part of the mix is extreme problems with decsion making, planning, scheduling and...
  9. Samuel

    Covid-19 vaccination experiences

    i have two questions. one is just a reddit issue. the other is re vaccinating when infected with bacteria. 1. reddit i don't know how to use reddit, so i don't know where the covid pinned post is. anybody know? > Check out the covid pinned post, it has larger polls about how people with...
  10. Samuel

    Complaints from patients with [FND]s: a cross-sectional UK survey of why patients complain and the effect on the clinicians..., 2018, Bolton

    HIPPOCRATES> Men think epilepsy divine, merely because they do not understand it. We will one day understand what causes it, and then cease to call it divine. --- thousands of years ago [idk if divine means divine punishment] TEXTBOOK> Between attacks, the frank epileptic is usually a...
  11. Samuel

    Neurostimulation for the treatment of functional neurological disorder: A systematic review, 2021, Dworetzky, Baslet et al

    1] am i an ungrateful git for wondering if this is potentially related to the nih cc interventional study? - https://www.s4me.info/threads/usa-national-institutes-of-health-nih-intramural-me-cfs-study.2980/page-9#post-399548 - the intervention seems to be transcranial magnetic stimulation 2]...
  12. Samuel

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Merged thread === Source: Clinical Trials U.S. National Library of Medicine Date: December 7, 2021 URL: https://clinicaltrials.gov/ct2/show/NCT02669212 Myalgic Encephalomyelitis Chronic Fatigue at the National Institutes of Health...
  13. Samuel

    (Ongoing) Long-term Sequelae of COVID-19 (Myalgic Encephalomyelitis): An International Cross-Sectional Study (ME)

    i [think i foggedly] get that they are just adding v stuff to the trial and i wouldn't question the reasons too much for observational trial but i'd still like to know what they are referring to anyway: > ecently, there has been global concern about the effectiveness and safety of COVID-19...
  14. Samuel

    Covid-19 vaccination experiences

    my memory/news tracking is not working well here for how bad and what type the reactions are in sick/pwme after time. i am also confused about the observation above and the comparison to normals. sounds significant. in the polls i have seen [cort, anzymes], istr pwme show high proportion of...
  15. Samuel

    Medscape: COVID Vaccines Linked to Functional Neurological Disorders

    yes yes, succubi and incubi are always out there. it is not as if there is any need to investigate further.
  16. Samuel

    New Zealand: Covid-19 vaccinations for people with ME/CFS

    ource: Stuff (New Zealand) Date: December 18, 2021 Author: Cecile Meier <cecile.meier@stuff.co.nz> URL: https://www.stuff.co.nz/national/health/coronavirus/127291645/i-feel-absolutely-worthless-chronic-fatigue-sufferers-cant-get-covid19-vaccine-exemption-despite-expert-support Ref...
  17. Samuel

    Stats question

    i like these questions.
  18. Samuel

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    i couldn't sustain attention on the instructions or figure out what to do with the test from its behavior. idk if this was useful for me to say.
  19. Samuel

    Covid-19 vaccines and vaccinations

    possibly at risk of autoimmune sounds to me like those who already have autoimmune. at least one of my tests is positive. anti-ds dna 27 or something which is supposedly highly specific to sle. but my "clinical pattern does not match". idk other tests. ana probably varies between normal...
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