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> Similarly, it is hypothesized that these patients may develop post-viral myalgic encephalomyelitis/chronic fatigue syndrome with possible associated small-fiber neuropathy, as previously described in other viral infections, or damage to olfactory sensory neurons, causing reduced cerebrospinal...

thank you @NelliePledge i do not have it in me to look but i will guess that you got it right. also, videos can be downloaded as a guard against destruction of evidence. e.g. youtube-dl.

1. istr there are lots of pieces of evidence that GET harm was denied explicitly. i distinctly recall a youtube clip years ago of a training session with, probably, c***re g*r**a explicitly saying, flat out, that there is no harm from the treatment. anybody recall this? 2. media reports are...

hi anniekim, the [to me potentially suspicious] quote in https://www.s4me.info/posts/386588/ should be in bacme's press statement yesterday [via tom kindlon, public]. === From: Dr. Marc-Alexander Fluks Source: British Association for ME/CFS (BACME) Date : October 29, 2021 URL...

i am possibly reading too much into this quote from bacme, but thought i would point out the possible connection just in case. bacme> ...provide further understanding of the underlying pathological processes that generate the symptoms experienced by people with ME/CFS in the hope this will also...

so, in addition to being forced to keep track of life sciences, medicine, rhetoric, medical politics of various types, misopathy, activism strategies and progress, national politics, uk politics, usa agency politics, rational ignorance, propaganda, eager skepto-idiots who are fed propaganda...

what tests show this? would a complete blood count often do? perhaps an anecdotal warning is needed on mepedia [have not checked] or by charities [ditto]?

thank you very much to those reporting the talks. that makes a difference. also it leaves a useful searchable text record. fogged but i would like to see the misdiagnosis thing clarified. i still don't get what is being said. it sounds as if they are aiming for purer samples more than...

appreciate seminars existing but e.g. specific times are not possible for me. i have never been able to attend a seminar since before y2k. i hope there will be a youtube and i hope that they will say so next time.

if i don't have a certain non-opioid medicinhen i don't sleep at all. sleep is one of the biggest factors in overall health. lessofthat medicinemeans bad health. but being stuck with a zero-to-spare system and relying on others who are unreliable to get the medicine and spilling practially...

meaction's website uses cloudflare and cranks up the settings so high that I have to spend infinite time proving I am human. I can't get access to the email protected or comment. Talking takes too much out of me and I won't be able to do the study if I can't ask questions in email. I want to...

did not read paper but a caution: - ime i think rapid water drinking, at least of cold water, can trigger a gastroparesis attack [6 gulps] - ime i think gastroparesis can take a long time to diagnose please note that: - idk what type of severe oi i have - my sample size is too small to draw...

the suggestion, for some severe m.e. at least, of pacing as management-ey [metaphorically keep track with a clipboard, known energy ceiling that acts as cutoff value], does not feel right to me. i can't articulate this well, however. i might be alone. am i also the only person for whom: >...

are there sex differences? [i have in mind maureen hanson's mind-blowing metabolic slides a few years ago.] [referring to above "Subjects were 37 women with ME/CFS and 38 sedentary women without ME/CFS."]

a couple of papers and a couple of books [for those gathering references]. there are probably a lot more but were in my notes and seemed linguistically/rhetorically related: One advantage of =91functional=92 may thus be as a simplifying euphemism, allowing neurologists to use the same term to...

i think @Kitty nailed it. flask, beaker. or scientist holding test tube, or a sketch of a human with iv, feeding tube, and cannula.

i haven't been able to determine if angioedema is associated with m.e. i have been assuming it isn't really, but really want to know. https://www.researchgate.net/figure/Algorithm-of-HAE-diagnosis_fig3_324737619 this algorithm alone is enough to confuse me. but that's me. it is not clear to...

@DFM can't read to nitpick or give substantive criticism for health reasons, but efforts like this are highly appreciated. to me a key point is that this historical event constitutes a mass human rights violation, per se. works like yours will help document the mass human rights violation for...

i am very sorry as i cannot read the thread for health reasons but i did read the op. also becasue i am goung to be pedantic. none of this is criticism at all. all of it is my expressing confusion. i am going from the thread title. i acknoelwge that titles are limiting. the thread title...

a bunch of questions that might or might not be relevant. idk if any can be answered, but it seems worth starting a list. apologies for fog and lack of brevity. anybody is welcome to summarize or make several posts if desired. it seems that at least some vaccines can make m.e. worse. do we...