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:) This is good news. I definitely eat a cheese heavy diet :) That’s ALL types of cheese, my current favourite being Emmental.

I think she blocked far wider than just people who sent or liked abusive tweets. Pretty sure I haven’t liked anything abusive, and certainly not sent anything. Is this another round of blocking? I was blocked in the first mass blocking episode. :(

@Sean All my spoons are currently absorbed. (I’m laying low after a good event :)) And, I haven’t followed this closely enough to comment right now. Hopefully I’ll have a clearer head in a few days.

That’s good to hear.

Sad that they choose to say CFS/ME. Perhaps it is a recycled ad, but even so. :(

This.

Another question is why Cochrane can’t accept the evidence reviews of the new guideline from NICE? Why repeat the effort?

Agree. And PEM sucks at whatever level it is set at. It allows no negotiation, just constant appeasement to it’s whims. :(

Put simply I think we have an inability to get fitter at will. To me that is a defining feature of ME, and PEM is the reason why we are unable to progress fitness. So, instead of our bodies repairing after exertion to a stronger state (which is the normal process of getting fitter), our...

Pacing can help me reduce how often I have PEM symptoms, but I don’t really think it is possible for me to avoid PEM altogether - even now that I am much more mild than I used to be. Touch wood - I no longer seem to get the type of PEM that means every episode causes a ratcheting downwards of...

This! Exactly this! There were of course some robust discussions, but there was considerable compassion towards patients from all quarters. The new guideline may not be perfect in the eyes of all, but I agree, it is a huge achievement.

CO2 intolerance! Sure what’s another intolerance amongst the many others! :rofl: It’s hard to know what’s what with ME. As you say the low CO2 could be an artefact of measuring, and if that the case then the other speculations that follow aren’t much use either. The experience I had, of...

Though if some homeostatic check was altered within ME metabolism, that made our bodies correct to the “wrong” level of CO2, then it might be possible that the rest could follow. Let’s face it most breathing is done below conscious control, so the real question should perhaps be why does our...

So what if low CO2 is a thing for ME peeps (and not just an artefact of the stress of the test)? AND What if that low CO2 in the blood then dampens the releases of oxygen to the tissues? As I understand, it the Bohr Effect causes haemoglobin molecules to release more O2 in situations of high...

Hypocapnia - I had to look it up. It’s reduced carbon dioxide in the blood. Maybe that could also contribute to our inability to ramp up aerobic energy production, as increasing CO2 is one way the body detects exertion that requires more O2 delivery to muscles etc.

ABI - Acquired Brain Injury NTBI - Non Traumatic Brain Injury. @Trish I think that’s correct. ;)

My n=1 observation tells me that when I regularly drink home-made kefir my mood stays good. Miss it for more than a week and I find my mood starts to drop. Of course there are loads of reasons that I might ‘imagine’ this to be true, and the fact I like the stuff means I keep taking it, but...

I think it might be interesting. Perhaps they’ll find something that is unique to sufferers? Or maybe they won’t, but it's worth a look surely? Hopefully the researchers will also ask about diet, because as Wonko suggests, that is indeed likely to have some effect on biome, but it might not be...

Yes to advice - absolutely, but treatment is something else, it suggests the worry is not appropriate.

Yet also, although naturally “worried”, this is not something that a doctor should feel they need to treat! Edit - Nor in my view should they attempt to treat if we don’t look worried enough!!