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I read it a couple months back. I got screened by their automated questionnaire back then, flagged due to age. They can over-ride that. I'm curious enough about the integrity of the efforts, and the metrics being used, to try to get in - but I will need to talk to a human with PI authority...

Well, yes and no. There's a bit of confused logic here, at least it seems to my poor thinking. First, medical syndrome terms ascribed by whom and to what end? I try not to lose sight of the mischaracterization that has haunted ME/CFS for decades. Second, yes, we know the root cause of LC, but...

No way? Some inept meds apply sloppy qualifiers on a few diseases, refuse to throw enough reseach $'s to discover what's at play in each, and you claim there's no way these and others like PTLDS could be separate diseases? This is in part why I think patients need to play a larger role in...

Semantics, most of which are rooted in willful inertia. You could use the same logic for PTLDS. And you'd have good argument for three distinct entities that look almost identical. LC is not ME/CFS is not PTLDS/chronic Lyme. Patients who have been around the block could write reams about the...

By this point the whole mouse model would be laughably absurd if it weren't embraced for far darker things like serial passaging of different pathogens to achieve performance and symptoms goals (e.g. gain of function).

What if someone has both? As in has two discrete diseases simultaneously: ME/CFS and LC?

Science doesn't necessarily win. It might not even place. Lots of books out there that try to demonstrate what happened, and why, but there's simply too many why's. ETA: This is an epic fail in diagnostics, which is different than what drags at ME/CFS, at least in theory. Geez, even that is...

Throughout the 1980's, in all facets of medicine, there was an acknowledged Lyme persistence called chronic Lyme. By the early 90's, a mammoth and sustained PR blitz to disappear chronic Lyme as a politically correct concept - that continues to this day - had been launched. By most accounts...

That's Bay Area Lyme. How circuitous of them. Lol. Thanks @Mij , I'm going to call just to say WTF. Nicely. In a patronizing old guy sorta way.

No phone number. Shame on them. It may be a generation thing, but if I can't talk to somebody, I'm not filling out any questionnaire.

Understood. Thank you. For the first time in about a decade, I just had my EBV and HHV6 levels tested. I feel like crap and likely look like death as well, but am unsure what my high titers signify other that past exposure - that's why I asked. :)

I'm sorry. How did you decide you'd HHV6 and EBV reactivation? I'm not disputing this; I'm asking to the metric. Why I'm asking is because I distrust current standards across many infections. I respect your interpretation.

May I ask, expressed how?

With immune tolerance, in theory, virus can persist without producing antibodies, so it's only through PCR or direct culture that we can "see" them, and if they're recused in reservoirs hard to access - like brain tissue -persistence can be difficult to demonstrate.

With a title like that, who needs an abstract?

Btw, I am aware he is making this our fight, and am relieved and empowered that we have members far smarter than I that are willing to take him square on and highlight the holes in his specious "theory". I just think we should be responding to him with "Hey, kid, you're in the wrong class" as well.

Understood. And well done. I'm just suggesting this shouldn't have to be our fight. We have many symptoms. One of my worst is balance. This can be objectively tested for. Fine. But there are others that cannot. Walitt is making a case based on one claim that he really is making, while...

I'm not sure that is our main argument. I think that's what Walitt appears so eager to disprove. I think our main argument is we are too sick with too many persistent symptoms to have any meaningful QoL, and to engage in any substantive effort for too long without having to stop because of...

I fear that resolution to the contested disease debacle must be political. That means, probably, something bipartisan. There really isn't much of bipartisan going around in the US these days. If there were, it likely wouldn't flow in our direction. We may have to build a better mouse trap, but...

@Dakota15 , I'm sorry, I don't know which group you're affiliated with. Do you work with Jamie Selzter? Sorry, my memory is not good. But I'm thinking I want to try to contribute something to the national cause, more politically, while I may still be able. When we were healthy, way back when...