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Just watched Chris Ponting's presentation. He seemed genuinely angry, and quite right too. A very good speech in my opinion and always very glad to have him in our corner.

I suppose the money will have to come from the Norwegian government or from charities/fundraising then.

That's disturbing. So they don't stand to reap a sustained profit if it works because biosimilars might flood the market in a few years?

Horrific.

Moved posts Do drug companies typically provide the drugs these sorts of experimental trials? Iirc for your RA rituximab trial you had to buy it yourself. I am thinking of the Daratumumab phase 2s struggle to get funding, and wonder if Janssen might be more open to persuasion to discount the...

I think this is a situation where it is frustrating that the forum hasn't got a 'direct line' to a lot of researchers. It would be very useful to know what F&M have already tried, ditto whether RD can be useful here. This feels like such an open goal for pharma/govts funding wise it's so...

You have said before that the 'hypothesis destroying' experiments that can total your hypothesis and help you build a better one might be drug trials in this scenario. Without speculating on what the drug would be, how might such trials play out? I'm interested in the mechanics and organisation...

I know Ron Davis' team were doing this kind of work with medical records regarding potential drugs.

The issue is that the recent piece on Simon Wessely was front loaded with so many poorly evidenced claims of irrefutable biological evidence that left the following discussion (which to be honest I only skimmed but it looked much better) of Wessely's many misdeeds vunerable to easy attack from...

Is it possible they have caught wind of the same developments JE has and are trying to accumulate enough 'evidence' to flood the zone with and drown e.g. news about DecodeME results out? Or am I overthinking things?

As in, AI will look at the most viewed articles/papers online to compile it's search results? If that's their move it's chilling. Honestly I've said this before and I'll say it again: the psychobehaviouralists behave like people who know their therapies don't work and are desperately trying to...

Don't forget 9/11 emergency responders/survivors.

Honestly I'd be much more offended if he had. At least he's not pretending to care about us while collecting his latest honour for throwing us to the wolves.

I agree, I feel like the UK MEA could redeem itself somewhat by reaching into it's coffers for this. OMF raise a lot of money too. You would think that this would be a priority for the community internationally. If it is discovered how to donate for those outside Norway I would be very...

I can certainly ask my Dad whether he's done one tomorrow.

Not that I'm aware! Do you mean a general one or one specific to psoriasis?

I don't have psoriasis but my Dad and sister both do!

Lipkins fundraiser has not done very well so far since the large donation that started it off, and I am concerned it is because the wording implies that they do not have any plans for clinical trials in the next five years. Under the section about what they planned to do with the next five years...

That sounds very frustrating, and I'm sorry it hasn't been fruitful so far. I hope that things change on that front as it sounds like a very worthwhile study. If there is anything we on the forum can do to help facilitate some progress, do let us know. Thanks for explaining further, that's...

Facinating - is there anything we can do to bring this hypothesis to the point where we can do a clinical trial? Or falsify it so we know we don't need to? Also, if those therapies are B cell depletion, does it follow that if it turns out Daratumumab works for ME/CFS perhaps non responders...