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There are inconsistent reports of significant improvement following a Stellate Ganglion nerve block - would that fit with what you are saying here?

I suppose what I'm getting at is, if your speculation is correct, what is it about pwME who have a longer time sick that might make it harder for them to be treated than pwME who have been sick a short time? If there is no detectable damage, as you have emphasised before? Some change in immune...

Thanks for the prompt response. I am still a little unclear on the exact implications of what you say. Are you saying that it may be hard work to find effective treatment for those of us who have been sick more than a couple of years? Or are you saying that it may be hard to treat the longer...

Could I possibly draw your attention back to this message? It would be good to have some clarity on what was meant here. Thanks.

To be clear, are you talking about early and late in terms of the time course of the disease or in terms of the chain of causality i.e. early being closer to the upstream mechanisms that cause it? Oh and would this reversal be necessary for an effective treatment or just for a cure that turns...

I've said this elsewhere on here but yes, I think the prodromal onset applies to me, if it is a thing. I have not felt healthy or well since around my 19th birthday, with all sorts of symptoms like DPDR and panic attacks and insomnia, but did not experience noticable PEM until shortly after my...

This is definitely the vibe today! Are we looking at tomorrow now or could it go up any time?

Yes I can certainly see that being the case.

At what point, or what threshold of evidence, do you suspect they will stop rolling their eyes?

I believe it was called The Ink Black Heart. In 2022 iirc.

Thank you! Its appreciated.

I don't want to speak for anyone else, but there have been quite a few posts implying that some significant research results will be out before the end of the year...

Wessely was appointed to some big review of trans health care last year...

I believe the comparison they are making is that people who think the mind body approach helped them recover are 'shut out' of the debate on ME/CFS in the way that they (imo falsely considering the situation in this country and elsewhere) claim that the small proportion of people who transition...

So hypothetically speaking FcRI mediated illnesses might 'look the same' but, like with the different arthritises, have enough hetrogenity to account for the diversity in symptoms we see in pwME?

It really drives home how political (in the true sense) this has always been. Wessely and his colleagues captured the institutions that could have helped pwME and told a compelling story that reinforced existing predudices and told those in power what they wanted to hear. If recent rumblings...

Many thanks for writing this Dave, and for quoting my response. Although you have committed the unforgivable sin of stating I'm from Sussex! (I'm actually from Suffolk)

Thank you.

Thank you all for your kind words. I wrote it almost on autopilot but rereading it as published I had that sense of 'how could this have happened?' that I'm sure many of you can relate to. @Peter Trewhitt I was worried about that too but didn't have the spoons to go trawling for references. I'm...

Its heartening to see it in print so quickly. I doubt it will make much of an impact but it feels important to have it there. Unfortunately I left my name etc on the end of the text when I copied it over so it appears twice at the end of the article!