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IOM seemed very reasonable, but on the other hand, I've seen a recent study showing that it tends to select people with depression (in pediatric patients). It's, of course, an open question as to whether that depression is a result of ME or CFS or if it's a primary disorder.. I tend to think...

From the ME-ICC paper: "Primary psychiatric disorders, somatoform disorder and substance abuse are excluded" Can someone explain me what they mean by that? Does it mean that if you're diagnosed with somatoform disorder or primary depression you don't get ME diagnosis? If that's the case, it...

I think that in terms of your pain, the best chance of improvement is probably to reduce the OI. "The subocciptal/paracervical “coat hanger” pain, conversely, has been hypothesized to relate to hypoperfusion of the paracervical muscles. Severity of neck pain appears to correlate with the...

Thank you for your suggestions, Helen, but I'm not a huge believer in microbiome testing and treatment. The research and methods used for testing, in my opinion, are in complete infancy and most of that would be a waste of money. At least that's the way I look at it. I've had my share of stool...

This one's definitely reliable, I have used it myself, but you have to provide a prescription: https://www.progressiverx.com/store/ This one has also been used by many folks and is reliable AFAIK, no prescription required: https://mimaki-family-japan.com/ I wouldn't use alldaychemist if I were...

Interesting to read this thread. I actually got very sick only after I used probiotics. The brand I used is called Theralac... A few weeks of that and my life was over. I was also trying to gain weight by eating a lot of rice and butter at the same time and it also didn't help, it seems.. I was...

If you have a look at the lecture from Bateman Horne Center on POTS, presenter clearly says that he thinks it's possible to have POTS without tachyvardia. I think that it's very likely a case in many ME patients. POTS is a trap becaue if you don't have positive results then once again doctor...