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  1. Skycloud

    Your OMF gift tripled this week!

    In the UK we have 'gift aid'. You sign a consent/declaration statement to the charity when you donate which gives them the right to reclaim the income tax paid by the donor. That's the basic idea. I'm hazy on the details because I'm not a tax payer.
  2. Skycloud

    Cochrane ME/CFS GET review temporarily withdrawn

    Does 'editorial process' include peer review?
  3. Skycloud

    Blood test ranges and low blood volume

    Not the first time someone has come to this conclusion on this on this forum so may be you're right!
  4. Skycloud

    Your OMF gift tripled this week!

    A few days gone by, still a month to go and nearly half way to goal. eta-'nearly'
  5. Skycloud

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    We need some good biomedical findings to be published. It won't solve all the problems but it would help.
  6. Skycloud

    WHO Endorses Traditional Chinese Medicine. Expect Deaths To Rise

    @Lisa108 I realise you were responding to the thread as a whole, which I haven't read in full. I would like to try to clarify my position though: I really don't care which tradition a treatment is from. I do want it to be evidenced for efficacy and safety TCM needs that just as other types of...
  7. Skycloud

    News from Scandinavia

    Perhaps someone might pleasantly let him know.
  8. Skycloud

    Initial Labs Ordered at Gordon Medical

    I hope both you and your daughter managed the doctor's visit reasonably well in the end and that it proves useful. I hope the doctor was nice too! It's a shame no one offered a little moral support after your last post, but you do have support here. When you can manage it please let us know...
  9. Skycloud

    WHO Endorses Traditional Chinese Medicine. Expect Deaths To Rise

    Enjoy the rhinocerous, tiger, shark etc while you can because this could see the end of them.
  10. Skycloud

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Actually that tweet seems to be a reply to a previous tweet of his own, so maybe not the tweet that's disappeared.
  11. Skycloud

    Cochrane ME/CFS GET review temporarily withdrawn

    It was temporarily withdrawn - you shouldn't have blinked ;)
  12. Skycloud

    Your OMF gift tripled this week!

    @Wonko - perhaps the 3-1 tactic reflects a desire to raise a lump sum now - there's been comment that they need money now because they need more people working on the research now. I dunno, I've really not got a view about this fundraiser. edit - grammar and clarity
  13. Skycloud

    Your OMF gift tripled this week!

    @Mij The initial focus of OMF is ME/CFS research https://www.omf.ngo/about-us/ It seems that they are intending in the future to widen the focus to other 'related chronic complex diseases'. If Lyme and Fibro are related I suppose research will one day tell. I can't see anything that...
  14. Skycloud

    Blog: Lloyd's Fatigue Clinic study asks “are women with CFS ovary-reacting?”

    Based on what we know so far we don't know the inclusion criteria. The information thus far is for gathering a pool of potential subjects to draw from. I suppose somebody could contact Dr Li to ask about it. eta - they could also ask if the voucher is for anywhere good ;)
  15. Skycloud

    Your OMF gift tripled this week!

    You've made some points that some people could find useful so I think they were worth making. I agree with this. Personally I'm interested in encouraging research in the UK so I won't be donating to OMF. They're a large charity (in the ME world) and I don't think this fundraiser will suffer...
  16. Skycloud

    Your OMF gift tripled this week!

    Except this is a forum where any member can voice concerns they might have as you have done. I would think the OP posted this in good faith and I don't think the original poster is responsible for whether or not people choose to donate. OMF are responsible for the info they give out and can be...
  17. Skycloud

    Blog: Lloyd's Fatigue Clinic study asks “are women with CFS ovary-reacting?”

    Funded by the Mason Foundation, looking for women with a CFS diagnosis but doesn't say what inclusion criteria they are using. Using questionnaires, saliva, and urine samples. hmmm.
  18. Skycloud

    Blog: Lloyd's Fatigue Clinic study asks “are women with CFS ovary-reacting?”

    Anyway, I found this: PARTICIPANT INFORMATION STATEMENT AND CONSENT FORM Ovarian hormones and symptom severity in chronic fatigue syndrome. CFS Group Dr Sophie H Li https://unswpsy.au1.qualtrics.com/jfe/form/SV_d5837GYlXvpZEVf
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