In the UK we have 'gift aid'. You sign a consent/declaration statement to the charity when you donate which gives them the right to reclaim the income tax paid by the donor. That's the basic idea. I'm hazy on the details because I'm not a tax payer.
@Lisa108 I realise you were responding to the thread as a whole, which I haven't read in full. I would like to try to clarify my position though:
I really don't care which tradition a treatment is from. I do want it to be evidenced for efficacy and safety TCM needs that just as other types of...
I hope both you and your daughter managed the doctor's visit reasonably well in the end and that it proves useful. I hope the doctor was nice too! It's a shame no one offered a little moral support after your last post, but you do have support here. When you can manage it please let us know...
@Wonko - perhaps the 3-1 tactic reflects a desire to raise a lump sum now - there's been comment that they need money now because they need more people working on the research now. I dunno, I've really not got a view about this fundraiser.
edit - grammar and clarity
@Mij
The initial focus of OMF is ME/CFS research https://www.omf.ngo/about-us/
It seems that they are intending in the future to widen the focus to other 'related chronic complex diseases'. If Lyme and Fibro are related I suppose research will one day tell. I can't see anything that...
Based on what we know so far we don't know the inclusion criteria. The information thus far is for gathering a pool of potential subjects to draw from. I suppose somebody could contact Dr Li to ask about it.
eta - they could also ask if the voucher is for anywhere good ;)
You've made some points that some people could find useful so I think they were worth making.
I agree with this.
Personally I'm interested in encouraging research in the UK so I won't be donating to OMF. They're a large charity (in the ME world) and I don't think this fundraiser will suffer...
Except this is a forum where any member can voice concerns they might have as you have done. I would think the OP posted this in good faith and I don't think the original poster is responsible for whether or not people choose to donate. OMF are responsible for the info they give out and can be...
Funded by the Mason Foundation, looking for women with a CFS diagnosis but doesn't say what inclusion criteria they are using.
Using questionnaires, saliva, and urine samples.
hmmm.
Anyway,
I found this:
PARTICIPANT INFORMATION STATEMENT AND CONSENT FORM
Ovarian hormones and symptom severity in chronic fatigue syndrome.
CFS Group
Dr Sophie H Li
https://unswpsy.au1.qualtrics.com/jfe/form/SV_d5837GYlXvpZEVf
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