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  1. Adrian

    Comparison of chronic fatigue syndrome/myalgic encephalopathy with other disorders: an observational study by Knudsen et al. 2012

    I think that there is another thing in terms of a forum allows people to come and go and spread energy in easier ways than things like phone calls or group meetings. So it can be quite a good way to form support networks for people with ME
  2. Adrian

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    Are you suggesting that some viruses seem to trigger ME more that others and that could be interesting info? I guess it could be interesting from the perspective of understanding infection paths.
  3. Adrian

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    My feeling is the first spike may just be noise particularly looking at the overall trend as the surounding years are lower. But the red spike does look a little different - However, data does this sometimes and it could be due to more people getting ME but equally it could be due to some...
  4. Adrian

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Perhaps the problem is that EBM was intended to beat up the drug companies not to point out the failings of academics. So now those who pushed for EBM are now faced with the issue that their and their friends work doesn't stand up to scrutiny. Of course the issue is made worse as information is...
  5. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I realize who the others are but these names didn't jump out.
  6. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    So he is claiming that the Cochrane review is 'very well done' even though the trials they base it on are not worth the paper they are printed on (and the same is true of the CFQ that Cochrane relies on). But he is irritated by others lack of 'critical appraisal skills'. Basically his version of...
  7. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    That is the point about Garner his symptoms got less and be attributed that to whatever the latest thing he was doing. But as he has a label of a scientist he gets to publish and talk about his attributions as if they were science.
  8. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    More like he is wandering round the wood with his eyes shut saying didn't hurt each time he bumps into a tree.
  9. Adrian

    Trisha Greenhalgh on ME/CFS and Long Covid

    I think that is becoming quite common in a number of countries. I remember a couple of years ago I was working with someone doing a PhD in the UK who was given a choice of styles. I like the idea of someone writing up a longer thesis as part of the process is the realisation of how research...
  10. Adrian

    Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?

    There may be a number that have the same issues as this one and the GET one in terms of what they think is an acceptable methodology. Any involving CBT are propably dodgy as its all unblinded so could be worth doing a trawl and comment.
  11. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Language has to be set in the social context that it sits in and the understanding of the reader. Words don't have meaning because of the definition in a dictionary; they have meaning due to they way they are used, common understanding and grounding to the world. Look at some of the implied...
  12. Adrian

    A general thread on the PACE trial!

    You missed off that people know of Winston as he did a TV program so people know who is is (or did a few decades ago!). I quite like this analogy for Winston as he is in the house of Lords so has political power but unlike a US senator he was not elected. Instead, I suspect, he got appointed...
  13. Adrian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Transparancy is about Cochrane publishing evidence that they went through a proper process (i.e. publishing all the meeting minutes). Otherwise we can have no idea of why they decided to change their policy or when they did it. Given it seems like such a bad policy as it means old stuff stands...
  14. Adrian

    A Data-Driven Approach to Predict Fatigue in Exercise Based on Motion Data from Wearable Sensors or Force Plate, 2021, Jiang et al

    This looks like it has been applied to people exercising but I wonder if it were applied to people with ME if different signals would be picked up from health people during normal activity perhaps as an early signal of PEM.
  15. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I always think there is an issue when looking at exactly what someone wrote. Writing is about 2 way communications how the reader reads and what they pick up is really a key part of the communications and that is based on a lot of context. In this case there are probably different groups of...
  16. Adrian

    Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?

    I think rules are often necessary for those who don't understand - and unfortunately its those who really don't understand who feel the rules shouldn't apply to them and they should be allowed to use their intuition. Often guidance can be good but where if people deviate they have to explain why...
  17. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The BMJ has a history of attacking ME patients so this really isn't surprising. If they give an honest reply they would say they believe it is perfectly ok to offend people on the basis of them having ME and standards of evidence don't apply to them. But I suspect they will just think that...
  18. Adrian

    CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT) , Hall, Crawley et al, 2021

    I wonder if she is still trying to play tricks with the ethics committees in doing a feasibility study that will suddenly become a full study
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