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I find zoom meetings worse than physical ones in terms of energy usage. But it may just be that I have more meetings. With zoom you don't need to be on the camera all the time. Some meetings I go to people will turn the camera on for parts (when they are more involved and off when just...

I wondered if there are things here that become easier with 'the new normal' such as more working from home which can be easier in the removal of travel time and effort and also more suitable seating including things like working lying down. I think employers are more understanding of home...

I think that is a really good point - currently there is a move to do unconsious bias training in companies (generally around race and sexism but some disability) So perhaps there is an argument for doing some equivalent more directly for healthcare professionals when dealing with patients.

I think the point I am trying to make is that is the wrong way around. I don't know how it would ever change but if we really believe in patient centered healthcare why shouldn't the medical profession respect the patients choice over name. Its not ambigious [edit - as in what someone is...

I would agree there. I think it is useful to talk of chronic fatigue as a symptom which comes from many different illnesses. Whether it is the same in all I think is an interesting question worthy of research and that could potentially provide clues. For example would it be interesting to do a...

They do seem to be in a position to identify what areas of the guideline are not well catered for in terms of treatments (or where evidence is poor). So it seems sensible as they do develop guidelines to identify weak areas as priorities but that feels like it should only be part of the input...

Such language has become standard corporate speak and is best filtered out.

He would probably just dismiss you as a woman, my feeling is he is driven by misogony rather than anything else and from what I remember that drives his other research as well.

In a way it is but the dressing gives something to attack and point out the flaws. Whereas with magical thinking it can be very hard to get past the you believe in magic part.

Obviously something interpretable would need to be found and I guess some of the Omics work has found stuff that is different but nothing consistent. I was just wondering if it is another route into understanding symtoms etc and also a potential for comparison with someone who recovers in terms...

Does this make new patients worth studying and then following through on the outcomes. I'm wondering for example in an Omics style study (or looking at the way mitochondria are working) were to be done on new patients with ME style symptoms at say around 2 months in and then examined the split...

I think it raises a really interesting questions. Are there two (or more) different underlying causes but common mechanisms producing symptoms but where one (or several) of the underlying causal mechanisms will fix itself in time. Or are they the same mechanisms and in some people they aren't...

She may just be the person who is pulling together the submission for the organization rather than writing the comments. I think my name may have gone on the S4ME submission but I wouldn't claim to have contributed much (if any) of the content which came from the forum and was edited and...

I think it is important to point out comments like the one discussed here https://www.s4me.info/threads/nice-me-cfs-guideline-draft-published-for-consultation-10th-november-2020.17687/page-27#post-323599 on the NICE guidelines use a very flawed cochrane review to try to discredit the NICE...

There is a surprise - this is why others have for many years said its shouldn't be used. Coyne called it the Elvis scale (long deseased but still sightings or to use his pun citings) and that was 2012 so 9 years later ..... https://psycnet.apa.org/record/2012-15667-008

Its easy for someone who is busy to take the blame but as an organization they should have an eye on progress and if things are delayed then they should be looking at what they can do and additional resourcing.

I think I may have raised the idea of legal action not because I think it is appropriate at this stage but because I think Cochrane don't take their responsibilities seriously and I suspect some of that is that they feel they will not be held accountable for the way they act or for putting their...

I didn't see the questions they were using to structure their interviews in the paper (but only skimmed). But it does make me wonder if simple polls and comments from members here could provide valuable commentry on the type of things they are saying and give a much wider sense of at least a...

They have been but that is changing I think for example with the new NHS guidelines. The other thing people writing papers will have in mind is what gets picked up with keyword searches etc when people are doing reviews.

I think this points out a real issue with the BMJ giving him a blog. I can see it is interesting to see over time how someones opionions change and how they get drawn into a 'faith' but the BMJ has given him a platform to push his latest believe with no regard to scientific validity. Being the...