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Didn't Wessley win that for bravely telling dangerous ME patients that CBT will make them better?

I think PACE is one of the better trials so I assume if any was likely to be rated higher it might be PACE. They had things like recording of adverse events - although I suspect the review committee dismissed any links to GET (I think at least one is was a CBT/GET fan) as they don't see exercise...

They should really put a much stronger note. If I remember correctly the rated PACE as high quality and NICE using GRADE rated it as low quality so they shouldn't just say that the evidence has not been evaluated using GRADE they should point out that when others used this methodology they got...

I have been doing the same. But I mostly forget to use smile rather than the normal link so don't end up donating much. But then these days I'm not buying much anyway.

Yes I normally prefer that approach but I'm feeling far more militant at the moment (not sure why). I'm not sure twitter really influences anyone - more its a way of seeing what groups agree with you and who disagrees. Its not a medium that supports giving a persuasive argument.

I think those in power don't want to be remembered as the ones who made decisions against the evidence so while there are those lobbying for PACE (still) I suspect those who actually make decisions will want to be careful and rational (hence I suspect they can't influence NICE).

Hence the importance of pointing out her prejudice in the same way as happens with someone who is a racist (some racists are open and proud of it but others use covert language and pretend they aren't). In the same way challenging can help point to that prejudice and that will be uncomfortable...

Threats are not acceptable - although they see complaints as threats where as things like complaints to the BBC are concerned with biased reporting, But lets face it some of the attacks are personal because they are commenting on their professional competance and actions. But things need to be...

Is that when you text someone to say you are better?

I think their is a group in the US doing something. Also the Kings group who do the symtom tracker may be doing something (and it comes from the twins project nothing to do with the psych groups at kings) so something interesting may come up here.

It is demonising a group, maybe not directly but she knows what she is doing in terms of bringing up complaints that were used to try to crush opposition and criticism from patients. Given the way this group acts where any challenge that comes from groups they don't like becomes nasty threats in...

I had remembered it as saying if she got death threats she would report them. Which sounded like a way to bash a patient community and bring up old stories etc. I think many of us have seen a lot of the twitter conversations going on. I've not seen anything in terms of threats. Have any others?

I've found the oposite but I suspect it is very data dependant. I'm not aware of a supervised version of TSNE but if you have labels you can build a classifier - if you want to then have an understanding of what features are important then using tree based classifiers can help as they are...

It depends on what PCA gives. TSNE allows nice 2d plots which are easy to interpret where as with PCA it depends on how much of the varience is captured with the first 2 principle components. I have seen people doing PCA as a dimension reduction and then TSNE (as it is quite costly). The...

If they have only just filed then it won't be published for a while (I can't remember the current rules but it used to be a year in the UK system and I think the US was similar). Initially just the title is published. Granting can take multiple years.

Yes the point is it brings a multivarient view onto the data an allows for combined effects. I've always like the hierarchical cluster analysis technique they use - but these days I tend to use TSNE which does a projection from a high dimentional space to a lower one whilst trying to preserve...

I wasn't thinking that. It does seem that there are people with post viral chronic illness with ME type symptoms and a proportion get better (partiularly in the first year or two). They will often meet the diagnostic criteria (with the 6 months) etc so perhaps we should just say ME. But I wonder...

There is a well thought out blog here on the subject here https://www.healthcarehubris.com/post/health-politics-in-action-professor-garner-s-change-of-heart-on-long-covid-and-me-cfs

I would quite like to see a cluster analysis putting all the interesting proteins for each patient in a vector. It would be interesting if there are clear clusters between the two groups but also if the ME group forms different clusters,

Is it? Given my and others experiences with GPs I think it is expected. The doing it in public is the surprising thing.