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“Research showed that a substantial number of patients with severe fatigue do not have deviant physical activity levels.(7) This was also found in our sample, i.e. 81% of participants had a fluctuating active activity pattern, and only 19% had a low active activity pattern.” In other words...

Many have just put their name there to do a favour to their friends because if CBT fails for ME, then they are worried that it will also fail for FND and then their whole world of make belief will come tumbling down.

No Dutch Crawley, ie Elise M van de Putte, either

Ty! "Fatigue is generally associated with low physical activity in patients with various chronic medical conditions. However, such an association has not been reported among patients with rheumatoid arthritis" (RA) Conclusion: "Among patients with RA, a higher level of daily physical activity...

“how can it be that some of these people have treated people with ME, but understand so little about the condition?” Because it’s all about money, power and their own careers and the health of millions of patients is totally irrelevant.

Never forget the first rule of cognitive behavioural therapy for post-infectious diseases i.e. their treatment is always affective, no matter the outcome of their study. And then the rationale is changed accordingly.

Always interesting to see that that Dutch journal never asks any critical questions when it comes to those sort of studies.

Yes please

didn’t you know that in the world of delusional psychology, you can increase your fitness without increasing your activity?

Guess who concluded that there is an inverse relationship between fatigue and physical functioning? Yes, you guessed it right, amongst others, professor Hans Knoop…

Thank you for your response to that bad article. If your response is still not open access, then it might be worth considering to contact the journal and stress to them that the original article is open access and as a consequence all responses to that article should be open access without you...

Have a look at how ZonMW spells her last name, that pretty much sums up that study…

Ty; Kuut: “Scores on the fatigue severity subscale of the Checklist Individual Strength (CIS), range 8 to 56, with higher scores indicating more severe fatigue; a score of ≥ 35 indicates severe fatigue“ Your PNG: “Subsequently the four subscales are calculated by summing the respective items...

Thank you, but there’s no need to apologise. The people who should apologise are the authors who should have used standard deviation and not standard error. By using the latter, they give the impression that they do not want people to see the spread of their participants.

The director of NCKV is Prof. dr. Hans Knoop who outsources it to mental health or medical psychology at the UMC led by: Prof. dr. Hans Knoop aka himself…

In Prins 2001, Table 1: Baseline characteristics of study participants, it is 3.9 so very similar

In regards to that Q-fever study, When we analysed them, we found this: Our reanalysis found that the Qure study suffered from many serious methodological problems, which included relying on one subjective primary outcome in a study without a control group for the non-blinded CBT treatment...

“we could argue over 95% with PEM versus 80% with PEM” It’s like saying, we could argue over 95% with a broken leg versus 80% with a broken leg in a study about people with a broken leg. Those people who don’t have that should have been excluded from the study. If that wasn’t done, then the...

Just as interesting is that Stevelink et al., which included Professor Trudie Chalder, concluded that “work-related outcomes should be targeted” in treatment for ME/CFS but for whatever reason they forgot to mention the null effect on work related outcomes in her own pace trial. Anybody knows...

Thank you, that trial is a typical example of labelling ineffective treatment as effective and ignoring your own results. Or to put a differently, it is a typical example of opinion based medicine.