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Has anyone had any experience of Dr Melissa Sargaison at UCLH?

In terms of Vitamin supplementation not being helpful, for a Severe or Very Severe patient who is bedbound and laying in darkness, I would have thought that Vitamin D supplementation was essential. It certainly has been in my case, as I got down to dangerously low levels.

I asked the team at UCLH and apparently they are working on implementing them in the near future. If anyone has an example/template they could send me, I'd be really grateful.

Here is the link to it: https://www.whatdotheyknow.com/request/uc_wca_reassessments_policy#incoming-2497028 I did message Benefits and Work on Twitter but didn't get a response.

And yet, rather than tell us they won't have the capacity to review everyone, they keep us all on tenterhooks assuming that the brown envelope could land on the doormat any day. It's psychological torture.

I've just had a response from DWP to my FOI request and they have confirmed that WCA reassessments are NOT suspended and will continue as usual for LCW and LCWRA claimants throughout 2024 and until the WCA changes in 2025.

Government's official response to the WCA Consultation: https://www.gov.uk/government/consultations/work-capability-assessment-activities-and-descriptors/outcome/government-response-to-the-work-capability-assessment-activities-and-descriptors-consultation

As soon as I saw the word "grading" I closed the document and deleted it.

I also saw on one article that, if you haven't found a job after 18 months, DWP can decide to close down the whole UC claim, even if you have childcare or housing elements which currently cannot be sanctioned. And you can't even go back to your council to claim housing benefit. You just end up...

According to the UCLH website, they refer to the condition as ME/CFS so I anticipated that I would be treated as such. But I wasn't asked once about my symptoms, other than a brief mention of the GPs referral letter. Basically the thrust of the diagnosis was that I was an overthinker so my...

Yes I agree. I'll be going into it with my head screwed on (other than the brain fog) so I'll scrutinise every appointment and request to make sure that I'm not being coaxed into something harmful. Fortunately they are telephone appointments for now so I should be able to cope. I currently have...

No I didn't take your comment that way. And you're absolutely right, I just wanted to get a usable diagnosis and didn't want to rock the boat.

To be honest, I had half expected the approach to be a bit quirky, having read around about RLHIM, but even I was shocked. It was a 60 minute appointment, and 55 minutes of it was pure "scientific" waffle without ever getting to the point. I literally had to interject at the end to ask what he...

I've just been seen at RLHIM and have finally got a diagnosis of CFS and Fibromyalgia. It was quite a long phone appointment with lots of scientific guff I couldn't understand. A lot of it sounded like pure quackery to be honest. And now I've been sent on my way with referrals for Physio, CBT...