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  1. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    no but if it was going his way would he be bothering to send a letter to the Guardian??
  2. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    If anyone was still giving PG the benefit of the doubt...... on the positive side it’s a letter not an article eta note the specific wording about no harm shown in trials rather than arguing GET doesn’t cause harm so they have conceded that wider point
  3. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Well that’s definitely something they need calling out on then.
  4. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    https://www.s4me.info/threads/bacme-position-paper-on-the-management-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-oct-2020.17360/page-8#post-331057 document posted here
  5. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Behavioural therapy for trauma uninformed behavioural therapy behaviour
  6. NelliePledge

    Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?

    Informed choice, :wtf: you could not make it up. It’s like all those countries with Democratic in the name.
  7. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Anyone know anything about the patient partners not heard those names before.
  8. NelliePledge

    Covid-19 vaccines and vaccinations

    You’re having a positive week @lunarainbows due to all the excellent work you’ve been doing on advocating for your needs. Virtual pat on the back and hug from me :thumbup::hug:
  9. NelliePledge

    Aripiprazole - Abilify

    My view on coffee or stimulants generally is informed by my experience. I managed to push myself to keep working for probably 5 years by having expresso coffee from the canteen at work or train stations when travelling. I felt pretty terrible but the coffee made me high enough to push...
  10. NelliePledge

    The dangers of sitting?

    If they brought this in I would definitely get a rollator with a seat, been thinking about it anyway, I’m not flippin standing up for an appointment.
  11. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Choosing to ‘do ME’ I hear is what they think of us plebs
  12. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    INews article about digital approach to treating LC being introduced in some areas of U.K. https://inews.co.uk/news/science/long-covid-digital-treatment-programme-rolled-out-in-hospitals-to-help-patients-with-chronic-illness-900691
  13. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    made me think of Gulliver’s Travels where the little people on the island who crack the pointier end of the boiled egg before they eat it think they are completely different to the little people who crack the rounder end first
  14. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    If I were you I would contact Carol Monaghan to see what she thinks https://members.parliament.uk/member/4443/contact
  15. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Wondering if this is something that the House of Commons Select Committee on Science might be interested in bearing in mind Carol Monaghan is on that committee. @Caroline Struthers
  16. NelliePledge

    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    Great news. I hope people in the community who are able to will support Keith as with Dave he has done a lot towards highlighting the issues and I feel it is important for his work to continue without having to be reliant on sporadic grants.
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