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The physical approach exacerbates symptoms that’s where the psychology has to be deployed to stop the unhelpful belief the symptoms are exacerbated voila

Sadly despite the NICE statement on GET I think this was to be expected from the people who were involved in putting this information together. They are the status quo and believe they are right.

One man circle jerk

Sounds like a great idea @Forestvon unfortunately I still do a lot of pretending to be normal. I think I probably need to try to see if I can get any help from Dr with orthostatic intolerance because friends & family aren’t going to be able to get their heads round me needing to put my feet...

They don’t have to explain do they just assert and the field expands.

Good grief this functional BS has got a high R value - very concerned for post covid especially those that haven’t got a positive test on their record.

US based ME organisations should be questioning this. Anyone know if that is happening - @dave30th MUS on your side of the pond too this is concerning.

Thanks Michiel you made me laugh. They would have done better to just cut out the ‘research’ and post their questions straight on here.

@Brian Hughes please could you write to Independent SAGE to highlight this issue?

Thank goodness for the likes of @Brian Hughes to stand up against this nonsense.

Socialising outside your home is risky and almost impossible to pace so you don’t get any exacerbation of symptoms. being in a group of people all talking and laughing takes concentration and with time even as milder end PWME this is when I get any sensory overload Sitting in a chair where...

Good

There have only been very low deaths outside England in recent days & I think the other countries have been having some days wIth out any deaths

https://www.bbc.co.uk/news/53108405 this might help?

Maybe @PhysiosforME could ping them an email with a bit of advice?

I find they still steam up even with wire at first I saw somewhere that rolled up facial tissue to put Between the mask and the face over the nose catches the moisture and you can replace it if needed.

I had a hairdresser who cuts hair in your home yesterday and she was masked and had a plastic shield too.

Oh :wtf: here we go. Hopefully Independent SAGE will have some sensible people who will pour cold water on that one.

Every time I see LTFU of PACE mentioned my brain doesn’t think - follow - up :whistle:

Ugh. Seriously Presumably hysterical swollen glands as well.