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  1. J

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Thanks, that’s what I figured.
  2. J

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Thanks, interesting. I have one of the HLA risk alleles for psoriasis/psa, but do not have the disease. Maybe I should try sulf? https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-015-0640-3
  3. J

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    @Kitty can you describe what improvements you’ve had with sulfasalazine? Thanks
  4. J

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Well not different dosing rates but rather different dosage scheduling. Every 4 weeks the sixth dose is on week 20; every six weeks the sixth dose is on week 30. The total dosage in both cases is the same, about 9 grams. Every 4 weeks: 0,4,8,12,16,20 Every 6 weeks: 0,6,12,18,24,30
  5. J

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Dear @Jonathan Edwards, Although I respectfully understand that you remain opposed to cyclophosphamide, I was hoping you could answer the following question about the dosing schedule for cyclo. What is the justification for infusions every 4 weeks? Is there a biological justification for...
  6. J

    Mitochondrial protein interaction landscape of SS-31, 2020, Chavez et al.

    https://www.pnas.org/content/early/2020/06/16/2002250117 popular article here https://newsroom.uw.edu/news/study-yields-clues-how-drug-may-boost-aged-mitochondria
  7. J

    Attentional processing and interpretative bias in functional neurological disorder, 2020, Moss-Morris, Chalder et al

    This Chalder person publishes a lot. Does Kings College pay her on a per word basis? To me, this would be the only motivation for them/her publishing all these words.
  8. J

    Well known people reported to have Lyme Disease.

    https://www.pressreader.com/usa/national-enquirer/20200622/281543703149433 Original source
  9. J

    Academic publishing: a discussion

    Surgisphere scandal: Lancet still doesn’t get it https://statmodeling.stat.columbia.edu/2020/06/15/surgisphere-scandal-legacy-media-lancet-still-dont-get-it/ mentions this NYT article https://www.nytimes.com/2020/06/14/health/virus-journals.html
  10. J

    Academic publishing: a discussion

    https://statmodeling.stat.columbia.edu/2020/06/11/bla-bla-bla-peer-review-bla-bla-bla/
  11. J

    Research news from Bhupesh Prusty

    No comprendo. Damaging *his* scientific career?
  12. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.washingtonpost.com/health/2020/06/11/coronavirus-chronic/?arc404=true These people have been sick with coronavirus for more than 60 days.
  13. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Merged thread Comments open--After 6 Months, Important Mysteries About Coronavirus Endure https://www.nytimes.com/2020/06/01/health/coronavirus-mysteries.html?algo=identity&fellback=false&imp_id=764987108&action=click&module=Science Technology&pgtype=Homepage#commentsContainer Comments are...
  14. J

    Shingles vaccines, chickenpox, Shingrix

    Is there any suggestion whether the shingles vaccine is recommended for PWMECFS? My MECFS physician was not recommending this vaccine to their patients, but I do not know of any evidence that suggests that the new vaccine (or even the old one) is harmful to PWMECFS. Any thoughts about this?
  15. J

    Retraction—Hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19: a multinational registry analysis, 2020, Mehra

    https://www.theguardian.com/world/2020/jun/03/covid-19-surgisphere-who-world-health-organization-hydroxychloroquine Governments and WHO changed Covid-19 policy based on suspect data from tiny US company Surgisphere, whose employees appear to include a sci-fi writer and adult content model...
  16. J

    Retraction—Hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19: a multinational registry analysis, 2020, Mehra

    Harvard-laundering (the next stage of the Lancet scandal) https://statmodeling.stat.columbia.edu/2020/06/03/harvard-laundering/
  17. J

    Retraction—Hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19: a multinational registry analysis, 2020, Mehra

    This one’s for the Lancet editorial board: A trolley problem for our times (involving a plate of delicious cookies and a steaming pile of poop)...
  18. J

    Reversing age: dual species measurement of epigenetic age with a single clock

    comment on this paper located on the preprint website
  19. J

    Plasma exchange

    Young plasma might help....maybe https://www.s4me.info/threads/reversing-age-dual-species-measurement-of-epigenetic-age-with-a-single-clock.15091/#post-259902 Somebody just posted a skeptical comment about the study on the preprint website
  20. J

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    Updated website I think. https://corteneinc.com/development/
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