They're going to have a hard time spinning this as GET and activity management being "equally effective" since neither was effective and the scores didn't budge in either group.
It looks like it took them 9 years since trial registration to conduct the trial and report it. My goodness. I wonder...
It's the go-to website for neurologists when confronted with patients whose symptoms they can't explain. Lots of reports on social media of being given a scribbled note with Stone's website written on it and told to go away and never come back.
Reaching out to Treadway is a good idea as long as the letter is laser focused on the misinterpretation of the EEfRT task, not the wider ME/CFS politics of the study. I don't know him but generally most civilians have been very reluctant (to put it mildly) to wade into ME/CFS waters. You could...
Nothing to do with the journal. As an author, you can choose whether to make your paper open access or not. Keeping your paper behind a paywall is free while open access publishing is very expensive. I looked up what it costs at JNNP and it's nearly 4000 pounds. NICE obviously haven't chosen to...
I wouldn't trust the results of a neuropsychological test battery administered in such widely differing conditions. Maybe the LC group is the sickest and is lying in bed fiddling with it on a smartphone or tablet while the healthy functioning people are more likely to be sitting at a proper...
His NIH job description says "he officially joined the NINDS Clinical Neurosciences Program as a Staff Clinician in 2021 heading the Interoceptive Disorders Unit"
https://research.ninds.nih.gov/staff-directory/brian-t-walitt-md-mph
One of the 17 participants has publicly shared her experience which sounds pretty harrowing. I hope she suffered no long term damage.
It is a reply to this Bateman Horne Center Facebook post about the study...
In my experience, it depends on the personal bias of the rheumatologist. Some will call this UCTD, others will call it "get out of my office and don't come back". I saw a few rheumatologists when I was a young woman with fatigue, sore joints, ulcerations, hair loss etc. and very high ANA titres...
The press coverage has been as dazed and confused as the paper itself which also has no clear message. Normally studies of such low quality would get no press coverage and would struggle to get published in a legitimate journal but thanks to the prestigious institutional affiliation of the...
Autoantibodies to nuclear envelope antigens in chronic fatigue syndrome
American study with a CFS group (n=60) and two controls groups. Control group 1 consisted of allergy and depression patients. Control group 2 was healthy controls and blood donors. 68% of the ME/CFS group was ANA-positive...
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