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  1. Sid

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    They're going to have a hard time spinning this as GET and activity management being "equally effective" since neither was effective and the scores didn't budge in either group. It looks like it took them 9 years since trial registration to conduct the trial and report it. My goodness. I wonder...
  2. Sid

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    It's the go-to website for neurologists when confronted with patients whose symptoms they can't explain. Lots of reports on social media of being given a scribbled note with Stone's website written on it and told to go away and never come back.
  3. Sid

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Reaching out to Treadway is a good idea as long as the letter is laser focused on the misinterpretation of the EEfRT task, not the wider ME/CFS politics of the study. I don't know him but generally most civilians have been very reluctant (to put it mildly) to wade into ME/CFS waters. You could...
  4. Sid

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Government and insurance industry trying to minimise long-term disability payments by denying that the illness exists. It really is as simple as that.
  5. Sid

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    Nothing to do with the journal. As an author, you can choose whether to make your paper open access or not. Keeping your paper behind a paywall is free while open access publishing is very expensive. I looked up what it costs at JNNP and it's nearly 4000 pounds. NICE obviously haven't chosen to...
  6. Sid

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Are you planning to write a letter to the editor? This right here invalidates their whole thing.
  7. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Good to hear they've no intention of doing any ill-conceived clinical trials. Yet another discrepancy between bombastic public statements and reality.
  8. Sid

    [News Release] VA, NIH launch study of Gulf War Illness, 2023

    Let me guess... The study will conclude that GWI is due to effort preference.
  9. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Absolutely nothing, I hope, as long as America's version of Wessley is in charge of our thing over there.
  10. Sid

    Cognition and Memory after Covid-19 in a Large Community Sample, 2024, Hampshire et al.

    I wouldn't trust the results of a neuropsychological test battery administered in such widely differing conditions. Maybe the LC group is the sickest and is lying in bed fiddling with it on a smartphone or tablet while the healthy functioning people are more likely to be sitting at a proper...
  11. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Language typically associated with anxiety disorders/phobias.
  12. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Yup, BPS 2.0, with some neurobabble thrown in about the insula.
  13. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    His NIH job description says "he officially joined the NINDS Clinical Neurosciences Program as a Staff Clinician in 2021 heading the Interoceptive Disorders Unit" https://research.ninds.nih.gov/staff-directory/brian-t-walitt-md-mph
  14. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    IVIG has already been tried in ME/CFS and POTS and it didn’t work. My god, do these people even bother reading work that has been done before them.
  15. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    One of the 17 participants has publicly shared her experience which sounds pretty harrowing. I hope she suffered no long term damage. It is a reply to this Bateman Horne Center Facebook post about the study...
  16. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    In my experience, it depends on the personal bias of the rheumatologist. Some will call this UCTD, others will call it "get out of my office and don't come back". I saw a few rheumatologists when I was a young woman with fatigue, sore joints, ulcerations, hair loss etc. and very high ANA titres...
  17. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    The press coverage has been as dazed and confused as the paper itself which also has no clear message. Normally studies of such low quality would get no press coverage and would struggle to get published in a legitimate journal but thanks to the prestigious institutional affiliation of the...
  18. Sid

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Autoantibodies to nuclear envelope antigens in chronic fatigue syndrome American study with a CFS group (n=60) and two controls groups. Control group 1 consisted of allergy and depression patients. Control group 2 was healthy controls and blood donors. 68% of the ME/CFS group was ANA-positive...
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