Search results

This abuse will continue until we have a laboratory test.

In paediatric “CFS/ME”, if you don’t say you’re better, they start legal proceedings against your parents.

Crawley takes an inordinate amount of time to publish her trials. I feel like we were discussing FITNET and MAGENTA before this forum even existed.

If you already know it works, you wouldn't be trialling it. As stupid as these headlines obviously are, they really harm us. They run these marketing scams hoping parents will read this trash in the BBC and enrol their children in the trial.

The above description of the project is lay summary. The technical summary is below. Aren't these Celltrend antibodies that don't differ between patients and controls?

I first came across her 10-15 years ago when she thought hidden bacteria cause ME/CFS and that the cure is taking minocycline for years and avoiding vitamin D.

This is a serious and ongoing problem in our patient community. The pushback against psychobabble is robust but hardly anyone outside of S4 criticises biobabble studies. As a result, I go to other websites and see people who think their symptoms are caused by an enteroviral infection they caught...

Haha, I didn't know that. That makes all this even funnier. It reminds me of a recent remark by a doctor on twitter remarking that they get the likes of physios coming in to inform them that POTS is actually FND.

There is literally zero evidence for this word salad. As far as I can tell based on the totality of published literature, the immune system is functioning normally in ME/CFS.

So many of these LC newcomers reinventing the wheel. It’s quite annoying watching the same nonsense from 40 years ago being fed to a new cohort of people.

I wore N95 every time I got on public transport and at work. Never caught covid or any real cold/flu for years despite working in a hospital. Then 3 years into the pandemic the person who lives with me went to a social event unmasked, caught covid and infected me at home. Before that, I was...

When I saw this bit, I knew who the author would be without even clicking on the link.

More than a little premature if we consider the fact that many people develop ME/CFS without any apparent viral/infectious trigger.

There is also a certain arrogance of people who have been sick for 5 minutes to assume that their half-baked ideas such as abx haven't been tried thousands of times before (with disastrous results).

It looks like they got rid of this:

The inclusion criteria for this study are making it very hard to recruit. Machine translation of the tweet:

Same, except the SSRI part. I was told it was TATT - Tired All The Time - and told never to come to this office EVER again. I never mentioned the word fatigue or tiredness, by the way. My presenting complaint was tachycardia.

I think malaise describes how I feel on a daily basis very well. However, I can understand the reservations about it. It has a certain fin de siècle dramatic/hysterical ring to it, perhaps because it's a French word.

If you are a woman, particularly reproductive aged woman, bystanders are significantly less likely to use a public defibrillator on you than on a man with cardiac arrest. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2806840

20+ years ago an elderly woman clearing snow with a shovel (what possessed her to do this, I will never know) fell down dead beside me of cardiac arrest. It was extremely sudden with no warning, she just went blue and nonresponsive. Back in those days there were no mobile phones or...