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Cochrane sucks these days, and not just for ME/CFS. I was reading through some of their recent protocols for reviews in a field I’m in and was quite shocked by how badly done they were.

The bit about resting & enjoying it, it’s a shocking thing to see in an scientific paper. I hope it’s just non-native English, not malice.

The team are wasting no time putting valuable work out there. Impressed.

Cringe indeed. 20 years of work in the field? What has he got to show for it? Has he ever helped a single person with his “research”?

MTHFR is such a blast from the past. There was a time about 10-15 years ago when it purported to be the explanation for everything in alternative medical circles. Half the population have the “mutation”. I am amazed anyone actually sat down and typed all this nonsense in 2023.

ME/CFS diagnosis is something you generally stumble upon yourself when you are searching for answers online. It’s not something that’s easily doled out by doctors. I think lower SES/lower educated people get sent to a psychiatrist.

The government is designing research studies using “cookie-cutter testing” because they know in advance that the tests will turn up nothing and they can deny the huge deluge of disability claims by using this fake research as evidence that long Covid is fake.

The idea that something could be accomplished by stimulating the trigeminal nerve goes back to 1990s and Goldstein. No idea why they’re using buzzwords and saying incorrect things like There is no systemic inflammation in ME. No immune abnormalities reported in ME have ever withstood...

Not surprising to see that a billion has been squandered. I never expected that any useful information would come out of these studies. Most research these days is a scam to keep huge academic bureaucracies going.

Very concerning to see these data come out years after the initial push for everyone to take AZ and the anti-vaxxer accusation at anyone who questioned the lack of long-term safety data. A friend of mine had huge deterioration in health after AZ. Whether it was a coincidence, who knows.

Impressive response rate. Considering how few people in the UK have actual ME/CFS (as opposed to PACE/Crawley broadly-defined fatigue), a target of 25k was super aspirational IMO. Perhaps recruitment could be expanded to other countries.

Yup. The “treatment” often consists of a scribbled piece of paper with a weblink to Stone’s ghastly website. But it’s ok because the grifter doctor says he believes the patient!

Fooling no, but there has been a definite attempt by leading proponents of FND to increase mainstream legitimacy of this diagnostic category by appearing distance themselves from Freudian “conversion” narratives, by emphasising positive diagnostic signs (as opposed to being a diagnosis of...

Useful study. To me, these findings suggest that medical students aren’t fooled by the attempted rebranding of FND. Most of them are aware that it’s all just psychosomatic old wine in new bottles.

It’s impressive that this guy convinced a charity to give him 13 million pounds for this nonsense.

Sounds like a gruelling ordeal. I have mild-to-moderate ME these days and there’s no way I’d be able to handle all that.

I didn't even know they were using 7 Tesla scanners in humans now. When I was in college, I recall being told that this stuff was for rats only. https://pubs.rsna.org/doi/pdf/10.1148/radiol.2019182742 Damn.

A whole new crop of people entering the field and wasting government money on treatments that have already failed for the last 40 years.

Lol https://twitter.com/bhupeshprusty/status/1641571486161829890

The worst thing about it is how confident it sounds while it’s hallucinating made up things. I asked it to produce some fairly basic code in a niche area and it spat out nonexistent gibberish with extreme confidence.