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The paper offers an explanation for why rituximab doesn’t work for SLE

Huge if true.

Congratulations to the team on this huge milestone.

Yes. It’s important to remember this is largely a pop psychology / marketing term. It’s not taught in clinical psychology.

Trudie needs to explain why conditioned fear of exercise / standing developed now but not after previous dozens of colds/flus/stressors/whatever the person experienced in their life up to that point. I’ve never met anyone who decided to just take to bed and never get up again after an infection...

She’s lucky. The last thing you’d want as a severe ME/CFS patient is to appear on the radar of UK “services”.

Can confirm. I saw one of those UCL neurologists for POTS and the prescribed treatment was go to the gym. I was almost 100% bed bound at the time.

Many ME/CFS scams of this nature have come and gone over the years. It always boils down to the scammer claiming he/she has a high accuracy diagnostic test or a potent treatment/cure, always presented in a fuzzy-on-the-details manner while presenting himself as a rebellious lone wolf scientist...

Microwaveable hot packs Sleep (the most effective intervention against pain for me)

Pretty funny study if not for the fact that it will be used as a weapon against ME/CFS patients. These marginal associations don’t exceed the ambient noise / crud factor that afflicts this sort of questionnaire research and can easily be explained by the common method bias. They measured...

Another scam no doubt.

Nature Communications (garbage open access journal), not Nature. Big difference.

The problem with this study, like with most studies of this type (epidemiological trawling through EHR), is that the definition of outcome is quite crude. Everyone here probably has brain fog but how many doctors will actually put down something so serious on your record: Most ppl complaining...

According to the supplement, the risk of developing fatigue on phenytoin was not significantly reduced compared to either levetiracetam or valproate.

All of these things have already been tried in ME/CFS (which is what long Covid is) and shown to be useless.

I’d say if they had anything publication-worthy, we would have heard it by now.

Not surprised to see this. We’ve seen other LP advocates who claim to have been cured drop out of mainstream employment and become public spokespeople for the alleged cure.