It’s really scary and demoralising seeing GET vultures getting their claws into another patient group. No amount of debunking of bad research seems to stop the BPS juggernaut. They just use a different name for the same illness and continue as if nothing has happened.
Agreed. It’s also telling that they deliberately chose not to do what most trials these days do which is to obtain written consent for data sharing.
Not that it’s even necessary to reanalyse the original dataset in this case. Unlike in PACE where the data analyses were fraudulent, here it’s...
This idea was quite popular in the 1980s/1990s in the UK. There were some studies showing hyperventilation on exercise challenge or tilt table but ultimately it did not pan out and even BPSers don’t really talk about it these days.
Usually these sorts of studies are done by young healthy trainees in psychology.
My fibromyalgia pain is worse than what I experienced after surgeries. I don’t see how exercise is possible in this scenario, let alone desirable.
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