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If you read back just a little bit in this thread, you can find that I sent a rather harsh letter to the Ministry of Interior (Beáta Sebestyén specifically) and the Health Colleges who created the consensus statement. In that latter I told them they had misrepresented the NICE guideline and were...

I think we have another Slovak member here on the forum called @tuha, so I'm tagging him to alert him, he will probably find this interesting!

There was a member in my group who was diagnosed with SFN by a specialist who teaches at a university. Then he went to another doctor as part of his quest to understand what is going on with him and he mentioned the SFN diagnosis. This other doctor shook his head in disbelief and said something...

No statistics in Hungary either. Hungary uses ICD codes for official diagnoses but even checking the data for medical records wouldn't work well as doctors don't even know the code for ME/CFS or that it even has a code. I think very few people walk around here with an actual diagnosis.

Do you mean which one? Microsoft Designer

HCPLive: Aquatic Exercise Improves Physical, Psychosocial Outcomes in People With ME/CFS “Six months of self-paced, low-moderate aquatic exercise significantly improved fatigue, depression, walk distance, lower limb strength and peak expiratory flow. PEM was not worsened by the intervention...

This is such an interesting term. Not to be insensitive but I just couldn't resist asking AI what it thinks spiky-leaky syndrome must look like.

This has happened to me too. My GP was away for some reason and another GP stood in for him. I went there with some throat infection that kept recurring over several weeks. She prescribed me antibiotics. I went back later because my symptoms came back again afterwards and my GP told me this was...

Oops, you are right, sorry. I have edited my post. ME moment!

Not strictly long covid but I'm posting this because someone might find it interesting.

Abstract Aging and COVID- 19 are known to influence DNA methylation, potentially affecting the rate of aging and the risk of disease. The physiological functions of 54 volunteers—including maximal oxygen uptake (VO₂ max), grip strength, and vertical jump—were assessed just before the COVID- 19...

I'd like to share some info that made my spidey-sense tingle. This study is associated with the German Prof Stark Institute. Actually this is what made me look this topic up, as recently this place has started popping up in my group as groundbreaking ME/CFS experts. Some hype is growing around...

Study suggested by @Utsikt

Abstract A water-insoluble β-1,3-glucan (Wβ) with a molecular weight of 8.12 × 104 Da was extracted from an edible fungus Wolfiporia cocos. Its backbone was composed of 1,3-β-linked Glcp branched at the C-2, C-4, and C-6 positions, connecting more 1,3-β-linked Glcp with a triple helical...

Long COVID: assessing work ability, adapting the workplace and supporting rehabilitation. A practical short guide for the workplace (This is another document from the post above, I'm just highlighting its content here):

European Agency for Safety and Health at Work (EU-OSHA): Long COVID: Rehabilitation and practical workplace support "New publications from EU-OSHA detail how to support workers affected by Long COVID, offering information on rehabilitation and guidance on how to assess work ability and make...

The Canary: Poland doesn’t even recognise ME/CFS – leaving one man living with it with no way out from domestic abuse Throughout all this time, Karol has been unable to get a formal diagnosis for his severe ME/CFS, and has only started getting diagnoses for the majority of the other chronic...

Btw, the author of the original paper only included a short reply to Tényi's letter: Rough translation: Dear Professor, I read with great interest your valuable addition, which confirms the timeliness of the topic I have chosen. Respectfully, Noémi Somorjai I have actually skimmed through...

I have never got a reply from the editor-in-chief of this journal to my letter but I have found something else. This is not related to ME/CFS but it is a letter to the editor by one of the authors of the paper in this thread, Tamás Tényi. The paper the letter addresses is about how non-binary...

Thanks. I also actually wrote an article about this in Hungarian of course and I'm planning to send both my letter and my article to the Hungarian media as well as key political activists, NGOs etc, basically anyone who may show interest in this. We do actually have independent media here, I...