Why word it this way? Why not title it "NIH details patients' experiences with post exertional malaise in ME/CFS"?
Perhaps more to the point, why are they still tackling definitions at this stage of the game?
Shouldn't they be talking about whether ME/CFS is an immune dysfunction, or...
Unless Kant was onto something, and causation is nothing more than perspective, a human "tool" with which to better navigate life. I think that was Kant. Sorry if I am misremembering. Sorry, too, if I am bungling what he or whoever said about causation.
As for psychosomatic illnesses, just...
I am delighted whenever the voice of the patient is integrated into medical discovery. Focus groups, however, at least to this old time market researcher, smack of marketing.
I thought a general rule of thumb is pathogens resulted in elevated VEGF, at least as far as serum VEGF (vs CSF VEGF as pertains to one of the first two studies in this thread, not the one I linked to.) Same with cancerous tumors. Low VEGF seemed peculiar to a couple cardiac issues, and a host...
But there seems to me a meanness of spirit underpinning it. People are being harmed, but still this spectacle continues and encouraged and rewarded, like 19th century gentry gathering to hunt fox. It almost has the feel of perdition.
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