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  1. Kalliope

    Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study, 2021, Similä et al

    Is this the same research project? https://www.s4me.info/threads/experiences-among-school-personnel-and-school-nurses-on-educational-adaptations-for-students-with-cfs-me-a-qualitative-interview-study-2021-simila.23285/
  2. Kalliope

    Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study, 2021, Similä et al

    Not able to read the paper at the moment, but want to (red) flag that one of the authors, Ingrid Helland, is leader of the National Competence Service for CFS/ME in Norway and known for her biopsychosocial approach to ME.
  3. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I think it should also include that the revised NICE guidelines is now warning against the method she is selling. I believe it's difficult for outsiders to see through her propaganda. She appears very certain and appeals to authority in her argumentation.
  4. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Medscape More Than 100 Million People Worldwide Have or Had Long COVID: Study quote: The most common symptom was fatigue, which affected about 23% of people with lingering issues. Other symptoms, such as shortness of breath, insomnia, joint pain, and memory problems, were reported by 13% of...
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Just started to watch this webinar now, and ME specialists have already been referred to twice as very useful for doctors caring for Long Covid patients. the organiser is Harvard T.H. Chan School of Public Health. Title: Understanding Long COVID: The Unseen Public Health Crisis ETA: This seems...
  6. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Good article about the revised NICE guideline in a Danish newspaper for medical news. The Danish ME Association is interviewed and says Denmark needs to catch up. The Danish Health Authority didn't reply when the journalist reached out to them for a statement for the article. Dagens Medicin...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Irish Times The long and short of it - 'Long-Covid' is not unique in viral illnesses quotes: Immunologists don’t know for sure why SARS-CoV-2 causes extended ill health. But it resembles “post-viral fatigue syndrome,” which has been known for decades. “Brain fog and general malaise are...
  8. Kalliope

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    NIH Long-term study of children with COVID-19 begins quotes: A large, long-term study of the impacts of COVID-19 on children has enrolled its first participant at the National Institutes of Health’s Clinical Center in Bethesda, Maryland. The study, which is supported by the National Institute...
  9. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Professor Karl Johan Tronstad has written an opinion piece for a Norwegian news site about research on why exercise make ME patients deteriorate. He mentions the NICE guideline, describes PEM and gives an overview of what research has uncovered so far about PEM. Hva er årsaken til at trening...
  10. Kalliope

    Long covid after breakthrough infection

    San Fransisco Chronicle COVID appears here to stay. But what about the 'long' version of the disease? quote: What’s missing, eight months after vaccines became widely available, is good data about how people with breakthrough infections experience long COVID, said Dr. Linda Geng, co-medical...
  11. Kalliope

    Experiences Among School Personnel and School Nurses on Educational Adaptations for Students With CFS/ME: A Qualitative Interview Study, 2021, Simila

    It has a website, but in Norwegian only. Here anyone who meet pupils with ME in their work; teachers, school nurses, other health care workers, can sign up for a course for free. https://www.meogskole.no
  12. Kalliope

    Long covid after breakthrough infection

    Moved post. In the last Weekly Clinical Update with dr. Griffin, at 15.48 minutes, he talks about not really seeing Long Covid in vaccinated people that get infected. He has reached out to many infectious disease physicians who combined are caring for millions of patients, asking them as well...
  13. Kalliope

    BPS attempts at psychologizing Long Covid

    She has given several interviews on how she recovered from ME with mindfulness at psychiatrist Bjarte Stubhaug. here is an interview with the Journal of the Norwegian Medical Association. Google translation here
  14. Kalliope

    BPS attempts at psychologizing Long Covid

    A news site about health has an article about Long Covid rehabilitation at a Norwegian clinic. The approach is based on a 3 day intervention against OCD and anxiety, which the clinic is now using to treat other diagnoses as well, as diabetes, back pain and now Long Covid. The psychiatrist who is...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NPR New clues to the biology of long COVID are starting to emerge quotes: "It's still early days. But we believe that long COVID is not caused by one thing. That there are multiple diseases that are happening," says Akiko Iwasaki, a professor of immunobiology at Yale University who is also...
  16. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    It is usually the other way around, with the BPS'ers setting the agenda with all kinds of strange stuff. This time it was the professors Saugstad and Rønning who started the debate with a great opinion piece, and now the BPS'ers for once, are the ones who must try to put out the fire.
  17. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The Danish local newspaper Ugeavisen Esbjerg has covered ME (particularly severe ME) many times, and has now interviewed the parents of a severely ill woman about the NICE guideline and its implication for ME patients in Denmark. ME-familie: Det kan forandre alt google translation: It can...
  18. Kalliope

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    And now Lightning Process coach Live Landmark is also weighing in in the debate about the NICE guideline.. It's in the same newspaper as the other opinion pieces about same topic. Helsedirektoratet må tåle presset fra ME-pasienter google translation: The Norwegian Directorate of Health must...
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