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SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in Sweden - Hasselroth et al - 2021 Research show that fibromyalgia has low credibility in healthcare, leading to poor treatment, lack of knowledge and...

Haaretz The New Frontier: Israeli Hospitals Contend With 'Long COVID' in Children quote: “What’s interesting, is that in some of the children, it really appears as a direct continuation of severe illness but in very many of the children, there is a severe illness, followed by a lull of several...

There's an article in Nature as well, but it's paywalled Nature: An abandoned antibiotic makes a comeback to fight a common illness I really hope there's something to this. I've seen on close hold how much pain and suffering Lyme disease can cause, and how little there is to do once it's...

One of the authors is 2. leader of Recovery Norge and main author Gerd Kvale co-authored a study with psychiatrist Bjarte Stubhaug on CBT/mindfulness as curative treatment for ME. Gerd Kvale became a star when she developed a 4-day intervention against OCD a few years ago. She got featured in...

This is one of two places in Norway that will be treating Long Covid. The other one is Sunnaas which is a well respected place for rehabilitation, but I believe with a BPS approach to ME. It seems their main treatment approach to Long Covid will be rehabilitation in form of exercise.

Oh, dear. This is at a rehabilitation center in Norway called Helse i Hardanger. It's based on a four-day-intervention program against anxiety. They have expanded their treatment approach to several other diagnoses, and now obviously also to Long Covid. A psychiatrist who is working there says...

Article from a Danish new site about medicine and health on Long Covid. It interviews doctors who are working on rehabilitating Long Covid patients. They seem to describe PEM and have realised that classic rehabilitation doesn't work and that they have no real treatment to offer. But they still...

The Norwegian ME Association, The National Competence Service for CFS/ME and the Norwegian Institute for Public Health are organising a research conference in Oslo November 22-23. The conference is aimed at researchers, health care personnel and students. Lecturers: Karl Johan Tronstad Marte...

The Atlantic has printed an excerpt from Ed Yong's introduction to the coming book The Best American Science and Nature Writing 2021 Ed Yong: What Even Counts as Science Writing Anymore? quotes: The best science writers learn that science is not a procession of facts and breakthroughs, but an...

An informative radio interview about ME, with good, basic information for a general audience. Duration: 15 minutes. 702. The ME CFS Foundation South Africa founder and director Retha Viviers shines the spotlight on myalgic encephalomyelitis. Introduction: This week, East-London based singer...

Time Can Breakthrough Infections Lead to Long COVID? For an Unlucky Few, Yes Quote: “Deaths and severe disease and hospitalization are…understandably what we are focused on. But Long COVID is an absolutely debilitating disease,” Iwasaki agrees. “It’s really been ignored to a large extent, and...

This is a brilliant, short summary of Ed Yong's reporting on Long Covid and ME, and how research efforts must change in order to meet the patients' needs.

Merged thread ME conference October 2022 The Swedish patient organisation RME is hosting their annual ME conference 13th October [2021] from 13.00 - 17.00. The conference is aimed towards health care personell, researchers and decision makers within health care. This year it will be on zoom...

The Conversation Social media, activism, trucker caps: the fascinating story behind long COVID by professor Deborah Lupton quote: The outstandingly successful example of long COVID is the latest of a history of patient-led support, information sharing, activism, fund raising and involvement in...

Digital Journal Long COVID and the connection with chronic fatigue syndrome by dr. Tim Sandle Quote: Based on evidence from past viral outbreaks, researchers expect that at least 10-12 percent of COVID-19 patients will go on to develop ME/CFS following COVID-19. This tallies with the fact that...

The Week The cost of long COVID quotes: Whatever the cause, long COVID mirrors other mysterious, chronic illnesses triggered by viral and bacterial infections. Among them is myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), cases of which have been linked to outbreaks of SARS...

Conceptualising Long COVID as an episodic health condition Conclusion Long COVID may be conceptualised as an episodic illness, characterised by health-related challenges (or disability) that may be multidimensional, episodic and unpredictable in nature. It is essential to better understand...

An article about research into ME from the tabloid newspaper Dagbladet who has a history of grim articles attacking ME patients. I'm not sure why this article is coming now and if this is a hint of how the BPS-group will try to position themselves going forward. The article is paywalled, but...

Deepti Gurdasani (from twitter bio: Senior Lecturer @QMUL Epidemiology, statistical genetics, machine learning) has a critical thread about the article and study here: https://threadreaderapp.com/thread/1438780287958257664.html ETA: Corrected link