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  1. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Yes, that reminded me also of Professor Jason et al's study of undiagnosed youths with ME/CFS: Most youth living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have not been diagnosed, according to a new prevalence study from researchers at DePaul University and Ann & Robert...
  2. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    This is a publication from the research project Tjenesten og MEg, a cooperation between the two research institutions Sintef and Fafo who are looking into ME patient's meeting with the public health care system. Thread about the research project here.
  3. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Now published - link here ******* Preprint Research Square Socioeconomic determinants of myalgic encephalomyelitis/chronic fatigue syndrome in Norway: a registry study Abstract Background: Previous research has shown that socioeconomic status (SES) is a strong predictor of chronic disease...
  4. Kalliope

    How much did the Covid-19 shielding policy cost in Wales? A Retrospective Cost analysis within the EVITE Immunity study, 2023, Sewell et al

    I also wouldn't be surprised if some of this is simply down to not being able to shield properly. How to deal with doctor's appointments, grocery shopping, help in the home, family members going to work/school/parties etc? Is it even possible to shield when the rest of the society has stopped...
  5. Kalliope

    How much did the Covid-19 shielding policy cost in Wales? A Retrospective Cost analysis within the EVITE Immunity study, 2023, Sewell et al

    Shouldn't this rather have said that we are not doing a good enough job in protecting clinically vulnerable people?
  6. Kalliope

    How much did the Covid-19 shielding policy cost in Wales? A Retrospective Cost analysis within the EVITE Immunity study, 2023, Sewell et al

    Link and abstract of the study is posted later in the thread, here. BBC: Covid: No evidence shielding helped - Swansea uni study quote: Swansea University compared 117,000 people shielding in Wales with the rest of the population of three million. The study found deaths and healthcare usage...
  7. Kalliope

    preprint medRxiv: COVID-19 illness severity and 2-year prevalence of physical symptoms: an observational study in Iceland, Sweden, Norway and Denmark

    by Shen et al, 2023 Abstract Background Persistence of physical symptoms after SARS-CoV-2 infection is a major public health concern, although evidence from large observational studies remain scarce. We aimed to assess the prevalence of physical symptoms in relation to acute illness severity...
  8. Kalliope

    Long Covid in the media and social media 2023

    Trial by Error by David Tuller Some Recent Long Covid Articles from STAT/MuckRock, The Atlantic, and Nieman Reports
  9. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    A google translated quote from another (paywalled) article from today about the study: - The tendency to experience strong symptoms is in turn linked to being a woman and certain personality traits. Other important risk factors for long covid were: - Those who felt socially isolated had a...
  10. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    The study is all over the news today in Norway. The main message is that Long Covid has nothing to do with a Covid infection and that the diagnosis is useless. One of the articles: forskning.no Norsk studie avdekket long-covid også hos ikke-smittede: - Diagnosen ikke hensiktsmessig google...
  11. Kalliope

    News from Aotearoa/New Zealand and the Pacific Islands

    Stuff: Mothers' devastation as daughters develop the same debilitating illness that can mean years in bed quotes: They are known as the “millions missing” – missing from their homes, the workforce, society and even their own families. Kristie Boland speaks to some of the silent sufferers of...
  12. Kalliope

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    Tweet from one of the authors, Karin Magnusson: In 2.3 million Norwegians, we find that common long COVID complaints (doctor-reported) are only slightly more prevalent in individuals with vs without COVID-19. Still, the burden of long COVID is likely high, both on individuals and on healthcare...
  13. Kalliope

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    Prevalence of long COVID complaints in persons with and without COVID-19 Abstract We studied the prevalence and patterns of typical long COVID complaints in ~ 2.3 million individuals aged 18–70 years with and without confirmed COVID-19 in a Nation-wide population-based prospective cohort study...
  14. Kalliope

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    SKY News Hope for long COVID treatment breakthrough after study's 'really positive' findings Quote: Emerging data suggests the virus targets the mitochondria - the 'power generators' inside our cells. Scientists say the experimental drug appears to improve overall power output and a treatment...
  15. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Trial by Error by David Tuller Further Thoughts on that JAMA Network Open Article and Estimates of Long Covid Prevalence quote: The study provided an example of how applying loose criteria loosely is likely to yield a heterogeneous sample that includes an unknown number of people with...
  16. Kalliope

    Long Covid in the media and social media 2023

    Article from Germany on children, long Covid, ME/CFS and research on treatment approaches as pacing and relaxation techniques. Looks good from the google translation. BR24 Post Covid bei Kindern: Forschung für Therapie Google translation Post Covid in children: research for therapy quote...
  17. Kalliope

    Long Covid in the media and social media 2023

    The last two parts of the Long Covid series by Frank Gaglioti at World Socialist Web Site has now been published. The 4th and last part is on the history of postviral illness with a couple of mentions of ME/CFS. A social and medical examination of Long COVID as a "mass disabling event" Part 3...
  18. Kalliope

    News from Scandinavia

    Opinion piece from 17 year old Dina Holst-Larsen whose mother has severe ME. She describes very well the lack of support both to her mother but also to the rest of the family, who are suffering as well. Her uncle was diagnosed with cancer, and she compares the help and support he has been...
  19. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    The paper is discussed in the latest TWiV's Clinical update with Dr. Daniel Griffin (haven't listened to it yet): ETA: Have listened to it now. It begins at approximately 21.15. Dr. Griffin's main comment is that the paper shows the WHO criteria for Long Covid are too broad.
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