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I was confused since it's not in the thread's paper, but found the quote in a different paper: Preprint - Oxidative Stress is a shared characteristic of ME/CFS and Long COVID, 2024, Shankar, Bonilla, Davis et al.

Oh I see, I should have clicked the link you sent where that person also says they have low night vision. I don't think I have visual snow though. I kind of hope what I have is a downstream effect of something else or something with the brain, and not structural changes of the eye even though...

Night blindness too? I've never seen anyone else with ME/CFS mention that.

I'm trying to figure out if what I have is the typical "light sensitivity" of ME/CFS. For a couple years at least, I have light sensitivity in that it's almost painful to my eyes to be outside on a bright day. I have to constantly be squinting. Like what you'd expect if you were looking almost...

947 – Post-Acute SARS-CoV-2 Antigenemia Is Associated With Some but Not All Long COVID Symptoms Michael Peluso, Thomas Dalhuisen, Zoe Swank, Sarah Goldberg, Scott Lu, Samuel Han, Jessica Chen, Emily Fehrman, Khamal Anglin, Rebecca Hoh, Timothy J. Henrich, Dan Kelly, Steven G. Deeks, David Walt...

This might be related to cortical thickness. I don't really know much about this brain stuff. 173 – Brain Gray and White Matter Alterations in Cognitive Long COVID, 2025, McAlpine et al

937 – Lack of Association of SARS-CoV-2 N- and S-Antigenemia With Long COVID Annukka Antar, Perrine Lallemand, Zoe O. Demko, Armaan Jamal, Nuria Gallego Marquez, Tamilore Adeagbo, Selin Akbas, Elizabeth Pasetes, Paul Blair, Katy Shaw-Saliba, Andrea Cox, Michael Peluso, Robin Dewar, Alan Landay...

173 – Brain Gray and White Matter Alterations in Cognitive Long COVID Lindsay S. McAlpine, Nuno Barros, Allison Nelson, Rafay Khan, Cheryl Lacadie, Shelli Farhadian, Todd Constable, Serena Spudich [Line breaks added] Background Cognitive dysfunction is a common symptom of Long COVID (LC), but...

ABC News: 'Cerebrospinal fluid leaks cause painful headaches, but diagnosis is rare' "In short: A retired Townsville nurse suffering from debilitating headaches has received a procedure to fix a fluid leak in her spine. Intracranial hypotension affects an estimated five in 100,000 people but...

Response to the above paper: Recognizing the role of fibromyalgia in post-exertional malaise Alessandro Giollo, Mariangela Salvato, Andrea Doria [Line breaks added] Abstract The recent opinion by Charlton et al. published in Trends in Endocrinology & Metabolism [1] provides a...

Just posting because any new findings about what happens to the body after exercise/exertion might be relevant to ME/CFS. Edit: I made a thread for posting this kind of research.

Exercise-induced changes in high-γ cortical functional connectivity and short-interval intracortical inhibition Matteo Conti, Federico Carparelli, Roberta Bovenzi, Valerio Ferrari, Battista Di Gioia, Nicola Biagio Mercuri, Alessandro Stefani, Maria Giuseppina Palmieri Highlights • Central...

Here is the comment which Hilda also submitted: Project Talk Page 3/13/2025 Independent Advisory Group: Comment on the Cochrane exercise review Today, the Independent Advisory Group (IAG) submitted the comment below on the Cochrane exercise and CFS review to The Cochrane Library. If/when it...

I didn't know they cited the old NICE, and it's interesting in that the statement is blatantly wrong now and pretty obviously potentially harmful. If anyone has the full paper, could you quote that specific part about treatment guidelines? Is NICE 2007 the only citation there?

Evidence synthesis – Global prevalence of post-COVID-19 condition: a systematic review and meta-analysis of prospective evidence Mohamed Kadry Taher, Talia Salzman, Allyson Banal, Kate Morissette, Francesca R. Domingo, Angela M. Cheung, Curtis L. Cooper, Laura Boland, Alexandra M. Zuckermann...

I don't know what the difference is between the control group and the asymptomatic post-COVID group.

927 – Hormonal Dysregulation in Long COVID: Exploring the Salivary Cortisol Profile Marta Camici, Marta Franco, Lorenzo Talamanca, Manuela Petino, Jessica Paulicelli, Liliana Scarnecchia, Alessandra Vergori, Stefano Curcio, Roberto Baldelli, Paolo Zuppi, Andrea Antinori [Line breaks added]...

929 – Age-Dichotomous Associations of Long COVID With Frequency of Public SARS-CoV-2 Memory TCRs Selin Akbas, Shuai Li, Hao Zhang, Tamilore Adeagbo, Ni Zhao, Alan Landay, Michael Peluso, Elizabeth Thompson, Andrea Cox, Yukari Manabe, Hongkai Ji, Annukka Antar [Line breaks added] Background...