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  1. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Yay @Andy and the team finally some decent coverage in the grauniad
  2. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Cheers @wigglethemouse i got overexcited to get it posted and failed to tag @Andy and @Chris Ponting thanks :thumbup::thumbup::thumbup::thumbup:
  3. NelliePledge

    Coronavirus - worldwide spread and control

    On the same basis that drivers seem often to drive at or 10mph above the speed limit presumably some people are taking the social distancing as the max they have to do and approximately at that - especially with all the ‘if you can’ caveats in the messaging. Also since reduction to 1m has been...
  4. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Moderator note: Please note: at this point only people from the UK will be eligible to participate in the study. However people from anywhere, with or without ME/CFS, can register their interest in receiving updates about the study. People who register will receive information about...
  5. NelliePledge

    Attentional processing and interpretative bias in functional neurological disorder, 2020, Moss-Morris, Chalder et al

    Yep their research is like getting a homebuyers report on a property you’re looking to buy it’s 95% generic with a few words changed every time to “tailor” it.
  6. NelliePledge

    UK: Physios for ME

    Yes exactly this - when I saw it was a comparison that’s what I thought it would be - I was rather befuddled by the skipping around trying to see the read across or lack of.
  7. NelliePledge

    Open MSc research concerning Chronic Fatigue Syndrome/ME and pregnancy decision making. Being undertaking at Cardiff Metropolitan Uni

    Agree the age limit is odd seems to biased towards getting views from women who decided to have children rather than those who decided or were unable to........
  8. NelliePledge

    Attentional processing and interpretative bias in functional neurological disorder, 2020, Moss-Morris, Chalder et al

    The title blatantly gives it away interpretive bias oh Yes indeed that’s what you and your cronies whole ethos is based on - your own interpretive bias
  9. NelliePledge

    Well known people reported to have Lyme Disease.

    No I believe he will be known by some he’s been a host on some reality tv shows that Have been shown here. Oh dear yes I realised after American idol is in the post. It has been shown here.
  10. NelliePledge

    e-coli infection and leaky gut

    :hug::hug::hug::thumbup:
  11. NelliePledge

    Webcast: (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach June 8 Trudie Chalder

    Some patients do, others don’t get it and take what they are told by doctors as the gospel. Like what do you actually do when someone tells you they have Fibro and they also have a diagnosis of FND which their doctor tells them is the umbrella term covering Fibro and ME/CFS. I did nothing in...
  12. NelliePledge

    Is your "startle reflex” super sensitive?

    What I reckon ‘triggered’ insomnia and startle being heightened (not always but a good portion of the time). Was being regularly woken in the middle of the night by my parent who had dementia waNdering into the bedroom I slept in on fortnightly weekend stays and switching the light on to see who...
  13. NelliePledge

    Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with ME: Walsh et al June 2020

    Apart from needing repeat visits when you’re trying to get a diagnosis I’m surprised by people having monthly contact with a GP.
  14. NelliePledge

    Coronavirus - worldwide spread and control

    Yes. And if not Corona it seems like some other virus judging by how much he was sweating and how ill he looked.
  15. NelliePledge

    Coronavirus - worldwide spread and control

    Another UK Cabinet Minister Alok Sharma Business Secretary is now isolating awaiting results of test. He showed symptoms while speaking in Parliament.
  16. NelliePledge

    Nurses for ME

    Oh gosh this sounds positive
  17. NelliePledge

    Chronic fatigue syndrome: progress and possibilities, 2020, Sandler and Lloyd

    Yeah I kept myself going pushing through on coffee for the early years of my gradual onset but it eventually became like poison to me and seriously aggravated the insomnia.
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