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  1. NelliePledge

    Mini-crashes in late afternoon / early evening?

    I don’t get up til late morning early afternoon 4pm is a pretty good time for me. However if i don’t let myself have a lie in and get up say around 8 am for workmen or any other no choice type appointment I will often end up dozing in the afternoon. I just assumed it was because I was having 4...
  2. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Specialist input = CFS clinic or service - I suppose he’s going to say that because there’s nothing else but it’s a risk - who knows which covid patients will be made worse by their approach
  3. NelliePledge

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    If you do something extra like that you’re going to be at the milder end of ME like me and if you’re lucky enough to have family who will do literally all the chores and cooking I imagine it might be a nice thing to choose to spend all your energy on. In my experience I can’t do stuff like that...
  4. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Cheese & butter freeze ok @Hell..hath..no..fury... how do you go about freezing eggs though I didn’t think that was possible?
  5. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    oh we’re all on tiptoes waiting to read about the new choreographies @Caroline Struthers :whistle:
  6. NelliePledge

    Advice on mask-wearing to protect against Covid-19

    Agreed @Keela Too I have been outside my home/garden/drive twice in the last few weeks both times to walk round the corner to my relatives house. Both times I put a normal scarf made of cotton round my face. I have many such scarves. The second time there were a few people out washing cars/...
  7. NelliePledge

    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    Those dratted perfectionist workaholics who insist on spending all their time resting and sleeping in the daytime??
  8. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    https://www.ajourneythroughthefog.co.uk/author/jomoss/ Posted this blog by Jo Moss hopefully not duplicating Useful tips on getting shopping summarising everything she’s found out in recent days.
  9. NelliePledge

    Patient submission to BMJ: "I feel I am missing a piece of the puzzle", about FND

    Same thing for me with social media I feel I shouldn’t be questioning people’s diagnosis but then you see posts where they’re saying they have diagnosis of Fibro and FND which is the umbrella term which I know is dubious type of stuff pychosomatic protagonists would tell someone and others that...
  10. NelliePledge

    Anti-malaria drug used by armed forces and travelers "plausible cause of CNS toxicity syndrome"

    I don’t know if it was this anti malarial in 1999 I went to Sri Lanka the medication was two tablets one type I had to take daily and one once weekly. On the night I took the weekly one I “woke up” “saw” this human sized spider on the ceiling sat up in bed and screamed oh my god waking myself...
  11. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I’ve got a Sainsburys click and collect slot for end of the week. It turns out that it can be collected by someone else for me I just have to Forward the confirmation email to them so they can show that to the staff in the collection area. I’m putting their shopping on my order so they don’t...
  12. NelliePledge

    Emotional Awareness Correlated With Number of Awakenings From Polysomnography in Patients With [ME/CFS], 2020, Friberg et al

    More tripe. If I’d participated in this ‘sleep study’ and they showed me their conclusions I would be fuming.
  13. NelliePledge

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Well this gives those of us who are normally able to do a bit of social activity, breaks away, lunch out etc a very worthwhile alternative to put that part of our budget towards :thumbup:
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