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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    An older article but it contains a very important piece of wisdom, an inevitability I raised a few months ago but should really come into focus soon if we want to do better at dealing with the consequences of COVID-19. Neurologic manifestations of nonhospitalized patients with COVID‐19 in...
  2. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Fantasy: there is no harm in arbitrarily dismissing some illnesses and systematically refusing to do anything more than clowning around because there is no possible harm, the symptoms are silly anyway, the patients are icky and what's the worse that could happen anyway? Reality...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is it really "known" if it's systematically dismissed in practice? Lots of things in medicine appear to be generically "known" but also silly to suggest in any particular case, or even "known" enough as to have been expected. Which it clearly wasn't, again. In fact even in confirmed cases of...
  4. rvallee

    Covid-19 related treatment and other scams

    Looks pretty similar to the LP. And the BPS model. What a coincidence that unofficial quacks are saying the same things as official quacks. Just amazing coincidence.
  5. rvallee

    BPS attempts at psychologizing Long Covid

    So it seems like donkey medicine, assumptions-based evidence, has been normalized enough to now be a standard, with unblinded trials with no objective outcomes and vague goals. Poorly assessing cost efficacy without controls based entirely on assumptions that rehabilitation must be effective...
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Recognition: file not found Where does that even come from? Nothing has changed. We're making some headways but current efforts are still less than 1% of what they should be. It annoys me so much when newspapers report that. Why? It's not even close to be true. Might as well say we've got this...
  7. rvallee

    Covid-19 - Psychological research and treatment

    Never forget the main BPS skills are persuasion and manipulation. They are genuinely good at this. And nothing else, but still, relentless self-promoters selling easy solutions to complex problems that they simply reframe as easy alternative problems. It's always vague generalities spun with...
  8. rvallee

    Covid-19 - Psychological research and treatment

    It's the part that says patients aren't looking for a cure that gets me. It literally 100% is the only thing 100% of us care about. The best case scenario is that and nothing else, a quick in-and-out. We can settle for less until then, but this is as straight up as someone who walks to a...
  9. rvallee

    Covid-19 - Psychological research and treatment

    I'm still so confused by this. It's assumed as fact, almost to the point where considering not doing so is unimaginable. From the very second it's as if a giant bat-signal saying "REHABILITATION" was shone in the sky, brighter than the noon Sun. It's a visceral sensation that this is what needs...
  10. rvallee

    Dr. Anthony Fauci on Long Covid and ME/CFS

    That assertion would carry more weight if we knew what ME is. Obviously there are additional aspects, though it's not clear what differences they add up to. Maybe none. Probably not but we literally have no way of knowing because of willful ignorance going back decades and still the current...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    From a lung health foundation in the Netherlands. It could be that many of those can attribute their symptoms to pneumonia. I still don't understand the obsession with getting even people who were borderline athletes just a few months ago to exercise, as if they not only "deconditioned"...
  12. rvallee

    PEM for those who are, or were, mild sufferers, how would you describe it?

    For better or worse, the term has been widely adopted by the COVID community, surprisingly so I'd say. So at this point we are more in the territory of a poor standard being better than throwing confusion by seeking perfection. Perhaps crash might work well, but it wouldn't be adopted by...
  13. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Yup. Here is the attorney-general (no test status confirmed) and a senator (no test status yet either) with the supreme court nominee to the right. In a closed room. Super-spreader event. It's kinda weird that super-spread events were more emphasized this week. Even weird is how obvious it was...
  14. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Don't want to go into details because politics but every single irony meter in the world has exploded from the circumstances that played out here. Just completely vaporized simultaneously. It would be considered over the top for satire. 2020 continues to deliver on the weirdness scale.
  15. rvallee

    Cochrane Review: Psychological therapies for the management of chronic pain (excluding headache) in adults, 2020, C De C Williams et al

    They genuinely seem to consider cherry-picked and selectively-reported patient-reported outcomes as the same as patient engagement. I have seen nothing showing otherwise, their idea of patient involvement requires it to be tokenism, ultimately only serves as a process to launder their own...
  16. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    It appears that several high-ranking US officials caught it as well, including some senators. Saw reports for several senators, aides and people involved in the campaign. Many people who tested positive were in close quarters with others. They continued doing normal activities after knowing...
  17. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    This is probably the best framing of the naiveté of this cheap philosophy. Love it. This approach misses the whole point, focusing on superficial trivialities. It's no different than speculation about natural laws in the 18th century or earlier, with not a single person having intuitively come...
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I don't have the brain power right now to make sense, especially in twitter condensed form. If anyone has the cognitive bandwidth to explain why leaving out decades of history by separating from it is not going to work out: The article is framed explicitly to separate long Covid from...
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