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  1. rvallee

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    This is literally made-up of imaginary numbers presented haphazardly without making any sense. It doesn't take into account most of the costs and so literally doesn't do an actual cost-effectiveness. And obviously something that is not effective cannot be cost-effective. It quite literally...
  2. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I read this more as "we will make problems for those patients" from someone who intends to make problems to those patients. None of this is serious, reality is too abstract to these people, they are moving pieces on a board without any understanding that those represent lives like their own...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's good, except complete naive that it is a common problem, certainly no need to go back a full century to look for examples, which says a lot. Medicine has completely dismissed and trivialized brain fog, psychologizing it as usual, and now some of the very people who would gaslight it have...
  4. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Carson is mostly talking nonsense in this thread but I think this may be a hint into the process that is taking place behind closed doors: requiring PEM is "making up a new definition" and thus the process is invalid. Without the context of the pandemic this may have worked, nobody knew or...
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Inside 'post-Covid' clinics: How specialized centers are trying to treat long-haulers https://www.nbcnews.com/health/health-news/inside-post-covid-clinics-how-specialized-centers-are-trying-treat-n1258879 In case anyone is still somewhat envious of the attention long haulers are getting...
  6. rvallee

    Maternal Psychological Factors and Onset of Functional Gastrointestinal Disorders in Offspring, Baldassarre et al, 2021

    One inescapable conclusion from the systematic pattern of arguing that there may be a relation (and that relation must be causal and in the preferred direction no matter how many straws have to be grasped to pretend this is a serious argument) no matter what to every null result is an admission...
  7. rvallee

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    From the various people showing increasingly shrill panic, I think the biggest implication here is not what this means for treatment for ME but the snowball effect this could have in EBM. Because let's be frank here EBM has revealed itself to be a completely incapable process, one that produces...
  8. rvallee

    Maternal Psychological Factors and Onset of Functional Gastrointestinal Disorders in Offspring, Baldassarre et al, 2021

    Like a stuck record spinning round round. Without Marshall's team peptic ulcers would still be stuck in the psychosomatic void of failure, saying the exact same things as this nonsense here, exact same as the old nonsense there:
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What I read from this is a frank admission that doctors do not understand the experience of illness until they personally experience it and I don't understand how it's not considered alarming because it's true and probably the main reason why medicine makes so little progress. I also see no...
  10. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    The cited paper does not support this ignorant statement in any way, it's itself very speculative and a position paper on LC from people unfamiliar with ME who claim no such expertise. Might as well have made a reference to google.com for all that the citation supports it. Which makes it all the...
  11. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Didn't they do a little clean-up recently precisely on the justification of removing reviews that are not current, there was one for Chinese herbs or something like this. What sense does it make to keep a review published that is explicitly marked as out-of-date? Makes no sense. It even says...
  12. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    One remarkable detail in all of this is that there is absolutely no discussion of the substance of the "treatments", that they explicitly aim to influence and change how participants respond to questionnaires. The entire process of the intervention is to make people perceive themselves better...
  13. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    But the question remains: was GRADE applied properly on the whitewash that is the "CFS" Cochrane reviews and similar work, giving high marks to unblinded studies with poor methodology and did not respect Cochrane's own rules and requirements, or was the correct application the one done by the...
  14. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    There has indeed mostly been talking, with not much walking happening yet. So far nothing actually useful has yet to come out of this, pending however the NIH spend that fortune. The UK's NIHR effort is too tiny to even count, frankly. All shows how much "attention" is worth: a whole thesaurus'...
  15. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    Weird how all the stuff that wasn't possible to do for us is perfectly possible and in fact being done quite naturally because it's the normal thing medicine does when it's decided that a problem is worth solving. Medicine did not solve ME as a choice. This could have been done decades ago...
  16. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done it differently because they don't like the outcome it gave without being there to change it to their preference. No substantial argument other than...
  17. rvallee

    Functional neurological disorder and multiple sclerosis: a systematic review of misdiagnosis and clinical overlap, Walzl, Stone et al, 2021

    From people who admonish the use of medical labels, no less. Almost as if it's not a sincere argument.
  18. rvallee

    [CBT] with exposure and response prevention in the treatment of obsessive-compulsive disorder: A systematic review & meta-analysis.., Reid et al, 2021

    This is universal to EBM. In fact EBM is mostly that, people pushing whatever they prefer until it sticks the old pre-science way of just arguing for one's opinion. It requires more than investigation, it requires overhauling the entire system to remove this state of double standards where...
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