Context pages 71 - 72 lines 9 - Context We recommend that the Context, currently placed near the end of the draft guideline, be moved to a more...
Recommendations for research page 45 lines 24-26 Diagnostic tests. We agree this is important. page 46 lines 1-3 Core outcome set We agree this...
Terms used in this guideline page 41 lines 9-11 Activity Suggest add: 'For people with very severe ME/CFS, significant activities include, for...
Terms used in this guideline Comment on section 'Terms used in this guideline' Explanation of terms used: The section 'Terms used in this...
1.15 Training for health and social care professionals General This new guideline presents a paradigm shift in the understanding of ME/CFS. It is...
Section 1.14 - Review page 39 lines 2-4 This assumes the patient has a management plan. There is also a need to more clearly differentiate what...
1.13 Managing flares and relapses Comment on section 1.13 Managing flares and relapses We find that the whole guideline, especially the...
1.12 Managing coexisting conditions page 36 lines 5-6 This is an important point and needs emphasising. We suggest adding: Note that doctors need...
1.11 pt 3 Psychological support - Line by line comments: 1.11.43: p.34 lines 2-5: The guidance not to offer CBT as a treatment or cure for...
1.11 pt 3 Psychological support: Cognitive behavioural therapy p.34 line 1: Comment on the subsection 'Psychological support: cognitive...
1.11 pt II Managing ME/CFS (Symptoms management) Rest and Sleep p.29 line 17: CBT should not be offered to support people to manage sleep issues...
1.11.17 - 1.11.22 (4 of 4) ——————————— 1.11.17: p.28 lines 12-15: Should be deleted and replaced with: ‘People with ME/CFS will typically...
1.11.11 - 1.11.16 (3 of 4) Physical maintenance p.26 line 16: We think the subsection, 'Physical maintenance' is a helpful, practical subsection...
1.11.4 - 1.11.10 (2 of 4) 1.11.4: p.25 lines 15-22 Recommendation 1.11.4 is too oriented to forward planning of activities, and makes no mention...
1.11 pt I Managing ME/CFS Energy management, Physical maintenance, physical activity 1.11.1 - 1.11.3 (1 of 4) 1.11.1 p.24 lines 4-5: We...
Section 1.10 Multidisciplinary care p.22 line 13: We suggest changing the heading of section 1.10 from 'Multidisciplinary care' to 'Coordination...
Section 1.9 Supporting people with ME/CFS in work, education and training 1.9.1 page 21 lines 4 - 5 Many people with ME/CFS will not be able to...
Section 1.8 Access to Care page 17 line 20 Access to Care: Overall section 1.8 is helpful. We are concerned that there will be a wide gap between...
1.7 Safeguarding p.16 line 5 (General): Move the content of 1.7 Safeguarding ME/CFS to the Section 1.2 Suspecting ME/CFS. The reason safeguarding...
1.6 Information and support p. 13 line 14: We appreciate that section 1.6 sets out the major impact of the illness on the lives of people with...
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