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  1. Suffolkres

    A general thread on the PACE trial!

    In the Lords debate above, Winston tried very hard to humiliate Margaret Mar. She did look crestfallen at the time, very uncharacteristic of her it was too, but everyone can only take so much of this drivel from Wessley acolytes and she probably decided what's the point in arguing as he...
  2. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Not together now though. This was from the Cumbrian site where they practice "integrated care' allegedly.... !https://www.ncic.nhs.uk/consultants/alastair-miller
  3. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Moved posts Interesting that Miller, (Wessley) White all have some link with either Military of Defence or DWP or insurance ? Plus Mr Miller is obviously an outdoor pursuits fan and having been in the military would have a particular mindset ? and like Mr Garner of endurance training and...
  4. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Thank you So much! You are the elephant who never forgets!
  5. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Ok, I take your point, but I think "conflict of interest" private work or association should be flagged up as a requirement? 'Rehabilitation'/ recovery services are to be big business post/long covid. PACE was muddied by DWP and similarly no one has dealt with Faculty of Occupational Medicine...
  6. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    There is more to Lucy V Clark.....according to her Linked in page Groups Vocational Rehabilitation Association Vocational Rehabilitation Association - Exercise is Medicine Exercise is Medicine - ukactive Together ukactive Together -
  7. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Adam, thanks for drawing this to our attention As we await the release of the new guidance and your long and hard slog, .......this BACME Conference is a serious can of worms is it not? David T? Food for thought? This is not NHS money well spent either...
  8. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Wearable’s – Lucy Clark F. ????????? Lucy V. Clark is a senior research associate in the Faculty of Medicine and Health Sciences at the University of East Anglia Gosh, how privileged are we in East Anglia and Norwich...........? AND she has a conflict being part of Vitality 360 LTD..... ( See...
  9. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    BACME infiltrated by alien forces...... AfME- shouldn't you decide to boycott this? Please answer? Rather than by attending which may will be construed as endorsement?
  10. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    BACME lecture delivered 3.15 Workshop choices: Wearable’s – Lucy Clark F. ????????? Quality and Research Innovation in practice interviews - Deb Roberts G A Behavioural therapy approach to Trauma-Informed Behaviour Therapy -Kirsty Northcott H. Dietetics TBC (see...
  11. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    WHAT???!!!! You have to be joking......no, it is no joking matter. I think we need a thread which lists all the weasel worded ways (WWW) they invent to deliver a BSP bulls**t approach to justify their careers, approach and keep their money rolling in........
  12. Suffolkres

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Any news of when stakeholders will be sent draft?
  13. Suffolkres

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I watched a documentary about Jack Nicholson and his eyebrows.... and his ensuing behaviour and excesses! I would suggest any eyebrow work up will be asking for trouble!? I wish I had his energy to even think about an eyebrow raise let alone an excess.....
  14. Suffolkres

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Moved post. Quote from a poster on Facebook who linked the article below. 'If true and he doesn't turn round and do a Prof Garner on us, this is big news. I'll post more on the relevance of this later but Prof Mansel Aylward is one of the main promoter of the biopsychosocial model of illness...
  15. Suffolkres

    Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial (BPS) model of disability, 2016, Shakespeare et al

    Moved post. Quote from a poster on Facebook who linked the article below. 'If true and he doesn't turn round and do a Prof Garner on us, this is big news. I'll post more on the relevance of this later but Prof Mansel Aylward is one of the main promoter of the biopsychosocial model of illness...
  16. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Well said, Trish. You speak for me..... I for one am tired to continue listening to a 'Devil's Advocate' interpretation and approach by others here. Although I concede initially in spirit of fairness, initially it may be necessary, after a while, especially after so many powerful views have...
  17. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Sorry for error. Sorry Doug Fraser! Doug Cross was the widower I met who's wife fell victim to the Camelford poisoning....( another WEaselly matter). (https://www.bbc.co.uk/news/uk-england-cornwall-44727036 6 July 2018Camelford water poisoning: Calls for new inquiry)...
  18. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yes you are correct- the Wednesbury Unreasonable ground or argument. I'm not a fan of the concept of Judicial Review as an appeal- .... nor am I having taken one to the high court and being told by judge I was 'right' but not right enough for a flawed decision to be reversed! My JR was a...
  19. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    oh no it was Norfolk patient Kevin Short and Doug Cross. It was an enormous amount of work and everone pulled together, but the forces that be..... One was an eccentric other female patient (JB) who hi jacked the process and scuppered it in effect. Plus the Kev's QC wasn't up to the task...
  20. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    There is if there is failure of due process. I believe, if I remember correctly.... it's called Judicial Review..?
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