Search results

  1. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    https://meassociation.org.uk/2017/03/mast-cell-disorders-and-mecfs-note-from-dr-charles-shepherd-following-last-nights-bbc-programme-16-march-2017/ https://patient.info/doctor/mastocytosis-and-mast-cell-disorders Mastocytosis and Mast Cell Disorders Authored by Dr Laurence Knott, Reviewed by...
  2. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    https://grantome.com/grant/NIH/R01-NS071361-03 Public Health Relevance Chronic Fatigue Syndrome (CFS) is neuroimmunoendocrine disorder with no definite pathogenesis or curative therapy presently available. Recent evidence suggests that CFS may be related to activation of a unique immune cell...
  3. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Actually downloaded in 2005, not 1999 - I too in my retirement phase am getting too old for all this......! It is very interesting and very well referenced. Food for thought? https://pubmed.ncbi.nlm.nih.gov/16282830/ Mast cells, antidepressants and chronic fatigue syndrome Theoharides...
  4. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Thank you Trish for this helpful response. Interestingly, I found a paper on Mast Cell issues in my 1999 file of print outs of issues overlapping or involving ME. I will revisit and read to see if it has any relevance to the discussion and post reference if it is.
  5. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Good to see this feedback and to see the comorbidities unravelling.... albeit slowly!
  6. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Cosy cabal n'est pas? Alistair Miller - Military connection SW Gulf War Military of 'Deference' Connection ....... https://www.mrc.soton.ac.uk/cmhw/professor-nicola-fear/ Professor Nicola Fear Nicola joined the Academic Department of Military Mental Health at King’s College London (KCL) in...
  7. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Not likely as she is at Kings, (as is Hoptof and SW...) this is a 2018 publication.... https://kcl-mrcdtp.com/wp-content/uploads/sites/201/2018/10/Theme-2-Project-Catalogue-201920-updated2.pdf 2822.2 Chronic Fatigue Syndrome, occupation and mental health; what enables people with CFS to...
  8. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Unlikely.... sigh again! Consultant profiles Contacts PA: Farhan Quadri PA email: farhan.quadri@gstt.nhs.uk Area of expertise: work related disorders and diseases. Biography chief medical adviser to Houses of Parliament 1999-present reader in occupational health, King’s College London.
  9. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Moved from this thread ____________ https://www.fom.ac.uk/media-events/publications/fom-guidance Just found but I haven't read it yet. However, Dr Ira Madan has 'FORM' not 'FOM' on ME claiming to be a bit of an authority...(2006 precursor NHS Health & Work Guidance on ME to PACE and NICE...
  10. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Urgent help needed. Perhaps the committee can help or the patient NICE reps? Where can the analysis of PACE can be found in the NICE Evidence Reviews please? FINE was hard to find when I was working on feedback on draft - like just about everything else - because the reference numbers in the...
  11. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Mmmmm........ Alistair was a medical advisor to AfME........ Another physician suffering from SMS, Short Memory Syndrome...? https://meassociation.org.uk/2015/02/minutes-of-meeting-of-forward-me-group-main-speaker-dr-alastair-miller-20-january-2015/
  12. Suffolkres

    A general thread on the PACE trial!

    In the Lords debate above, Winston tried very hard to humiliate Margaret Mar. She did look crestfallen at the time, very uncharacteristic of her it was too, but everyone can only take so much of this drivel from Wessley acolytes and she probably decided what's the point in arguing as he...
  13. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Not together now though. This was from the Cumbrian site where they practice "integrated care' allegedly.... !https://www.ncic.nhs.uk/consultants/alastair-miller
  14. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Moved posts Interesting that Miller, (Wessley) White all have some link with either Military of Defence or DWP or insurance ? Plus Mr Miller is obviously an outdoor pursuits fan and having been in the military would have a particular mindset ? and like Mr Garner of endurance training and...
  15. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Thank you So much! You are the elephant who never forgets!
  16. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Ok, I take your point, but I think "conflict of interest" private work or association should be flagged up as a requirement? 'Rehabilitation'/ recovery services are to be big business post/long covid. PACE was muddied by DWP and similarly no one has dealt with Faculty of Occupational Medicine...
  17. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    There is more to Lucy V Clark.....according to her Linked in page Groups Vocational Rehabilitation Association Vocational Rehabilitation Association - Exercise is Medicine Exercise is Medicine - ukactive Together ukactive Together -
  18. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Adam, thanks for drawing this to our attention As we await the release of the new guidance and your long and hard slog, .......this BACME Conference is a serious can of worms is it not? David T? Food for thought? This is not NHS money well spent either...
  19. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Wearable’s – Lucy Clark F. ????????? Lucy V. Clark is a senior research associate in the Faculty of Medicine and Health Sciences at the University of East Anglia Gosh, how privileged are we in East Anglia and Norwich...........? AND she has a conflict being part of Vitality 360 LTD..... ( See...
Back
Top Bottom