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  1. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I don't think professor Kennair necessarily has the whole university supporting him in this. The deputy at NEM, who was interviewed in the Khrono article about their decision, is also a professor at the same university as Kennair, NTNU. Must be awkward in the lunch room at NTNU these days..
  2. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A new article. This time from the news site for research, forskningno, and by journalist Ingrid Spilde. She has written several articles about research into ME before (among other the PACE study) and seems to have a good overview of the debate. She's also added some details about LP that are...
  3. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Khrono - a news site for academia - has an article about the National Committee for Medical and Health Research Ethics's decision on the LP trial. 2 months ago they had an awful article with Wyller attacking ME patients (discussed here). Today's article is written by the same journalist and much...
  4. Kalliope

    Insights from ME/CFS May Help Unravel the Pathogenesis of Post-Acute COVID-19 Syndrome - Komaroff, Lipkin 2021

    Trends in Molecular Medicine Insights from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome May Help Unravel the Pathogenesis of Post-Acute COVID-19 Syndrome Anthony L. Komaroff, W. Ian Lipkin Highlights • In some people, the aftermath of acute COVID-19 is a lingering illness with fatigue...
  5. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Trial by Error by David Tuller: Norway Rejects New Clinical Trial of Woo-Woo Lightning Process Quote: In a welcome display of scientific acumen, Norwegian research ethics authorities have rejected a proposed study of the woo-woo called the Lightning Process as a treatment for ME/CFS. Since...
  6. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The National Committee for Medical and Health Research Ethics has now uploaded their decision regarding the Lightning Process trial on their website. Nothing new has been added to what has been shared earlier. They have an English section on their website, and I hope they'll consider to...
  7. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I'm afraid she might have met many with ME. That Recovery Norge still hasn't gained more than 200 members speaks volumes in my view, and far from all of the stories on their website are about ME and Lightning Process. What happened to the rest of her costumers?
  8. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Good question. In the same twitter thread she also says (my translation): There are no measurable division between patients with different degrees of fatigue. PEM is an unspecified symptom. And the symptoms are sensory perceivements. In other words; not possible to measure in other ways than...
  9. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    The research news site forskningno also had an article based on this Dagbladet article. This was once again shared via another news outlet ABC Nyheter. ABC Nyheter shared the article on their Facebook page and a patient who says she was enrolled in the trial commented: When I see this, I get...
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    U.S.News Here's What We Know (And Don't Know) About Long COVID Quote: What's the connection between long COVID and chronic fatigue syndrome? Providers and top health officials have noted similarities between long COVID and myalgic encephalomyelitis, also known as chronic fatigue syndrome or...
  11. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    David F. Marks: Can Long-Covid be Cures with the Mind: Expert Patient or Nutty Professor? Guest authored by dr. Keith Geraghty Quote: Paul Garner’s recovery may have had very little to do with his mind, yet his mind now tells him it was the most important factor. That is perhaps the true power...
  12. Kalliope

    News from Scandinavia

    The Kavli Trust has an English version of their annual report from 2020. On page 45 they write about the research projects into ME they've supported with statements from professors Fluge and Mella. Kavli Trust has supported their research with 28.5 million NOK since 2011. That's 2 807 854 EUR...
  13. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Brian Hughes tweets: This is outstanding news. Congratulations @Nina_Steinkopf and colleagues!
  14. Kalliope

    Kynurenine metabolites and ratios differ between Chronic Fatigue Syndrome, Fibromyalgia, and healthy controls, 2021, Groven et al

    Here's a presentation of Nina Groven from the department of Mental Health, Faculty of Medicine and Health Sciences, NTNU. She writes: I am looking at the connection between inflammatory processes, CFS/ME and depression to enhance the knowledge about these disorders. One of the co authors are...
  15. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I hope you're right, and believe so. I think this has been an important project for the LP coach, obviously, but it's been interesting to see how they've moved away from using the name "Lightning Process" and instead calling it other things as 3-day-CBT-like intervention. I don't think there are...
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Letter to the Independent: People with chronic fatigue syndrome have suffered long Covid symptoms for years - why did nobody care? Quote: - Firstly, let me state that I have every sympathy with those suffering from long Covid. However, while not at all intending to detract from or belittle...
  17. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I agree it's easy to criticise, but waiting list controls is acceptable in psychological research, as far as I understand..
  18. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I added some confetti emojis for clarity. This is fantastic news indeed. A big victory for quality in research and a big loss for commercials pretending to be science.
  19. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The Research Ethics Committees for Medicine and Health Sciences (NEM) have ruled that the design of the Lightning Process study is NOT satisfactory and that the study should NOT take place. It is not possible to appeal this decision. :party::party::party: google translated: NEM believes that...
  20. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    He says why in a comment under a blog post by Nina E. Steinkopf about the study. google translated: Hi Nina You are absolutely right in your criticism of this study. When I commented on it to Dagbladet, I started by being polite to say something positive. Then I listed some weaknesses. I...
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