I've been thinking today that as the Long Covid problem grows, and sufferers can no longer be tidily swept under the psychogenic mat, it might actually be the health insurance companies who call the loudest for solutions.
Sure, the idea of GAS is ok - define what you are trying to achieve beforehand, and the measure of success. So, the expected outcome is that Mr Smith can work without a frame from his bedroom to his bathroom. A +2 result might be that he's back playing tennis, and a -2 result might be that he...
Posts about an article by Miriam Tucker about autoimmunity (based on findings presented at the IACFSME conference) have been moved here:
IACFSME 2021 Virtual Conference
I found it quite difficult to know how much of the drug each participant was given.
Regarding the number of steps recorded by a Fitbit:
Of the 14 people in the trial, 13 people had data on the change in the number of steps (as a mean of the number of steps per day for the 28 day period prior...
So, objective outcomes were planned, but, sadly, somehow they weren't possible. As @dreampop reminds us, this is a trial of Cortene. There is a substantial commercial interest in showing this drug is a successful treatment. Without picking through the biological justification (which may be...
I wonder if someone from the current PSP on ME/CFS might like to reply to this, to note that a substantial portion of Long Covid is likely to be yet another post-viral fatigue condition, and so the outcomes of the ME/CFS PSP will be relevant. Of course, unfortunately, the current ME/CFS...
The low numbers achieved on ME/CFS polls often surprises me. In my country there was a poll against the extension of the school year by two weeks this year, to offset Covid-lockdowns. It got over 20,000 votes in a day, I think, and that's in a very small country.
I know it's comparatively...
This thread and the links have information that I think is really relevant to the forthcoming NICE roundtable about the ME/CFS Guideline. Good therapists know that a lot of what they are required to do isn't helping anyone. If counselling services are stretched, target them to people who want...
That's a pretty important find @rvallee- the therapists are exaggerating the benefits of talking therapy, and even with that, the performance data of IAPT still looks rubbish.
Elizabeth Cotton looks like she might have some useful things to say...
I've posted this paper as much for a letter that was written in response to it:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371803/
Chronic fatigue syndrome, D.K. Arya
There are a few interesting statements, but this one stood out as illustrating how little progress has been made in the last...
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