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The WHO has released a document outlining a formal definition for long COVID, which it now calls “post COVID-19 condition.” See this thread: https://www.s4me.info/threads/who-a-clinical-case-definition-of-post-covid-19-condition-by-a-delphi-consensus.22688/

Do you sweat?

@Kitty Could you provide a link for this?

Abstract Background: Postural tachycardia syndrome (POTS) is a form of autonomic dysregulation and is characterized by an excessive heart rate (HR) increment upon the upright body position while blood pressure is maintained. Patients experience typical symptoms of orthostatic intolerance such as...

Phase 2 trial: Abstract Purpose In neurogenic orthostatic hypotension, blood pressure falls when upright owing to impaired release of norepinephrine, leading to dizziness. Ampreloxetine, a selective norepinephrine reuptake inhibitor, increases circulating norepinephrine levels. This study...

New paper on Salt: The paradoxical philosopher's stone of autonomic medicine - to expand intravascular volume or to raise blood pressure. Highlights Salt has profoundly shaped human history, including diet and medicine. • Salt improves orthostatic tolerance but also increases risk of...

I've been here a lot longer and I use this one now from banging my head :emoji_head_bandage:

Done.

Examples of diseases in which secondary dysautonomia can occur include: Diabetes. Parkinson’s disease. Muscular sclerosis. Rheumatoid arthritis. Lupus. Sjogren's syndrome. Sarcoidosis. Crohn’s disease, ulcerative colitis. Celiac disease. Charcot-Marie-Tooth disease. Chiari malformation...

"The challenge is there are no evidence-based treatments for long-COVID or late COVID POTS (Postural Orthostatic Tachycardia Syndrome) because it's so new. There hasn't been time to do studies. But at the same time, from a patient point of view, it's not reasonable to say 'sit tight' or 'we'll...

This doesn't help either.

I bought a 3 inch latex topper 6 years ago and it is still very supportive.

@JemPD No, latex is nothing like memory foam. You don't 'sink in', it naturally holds it's firmness with just the right amount of support and regulates temperatures. I spent a bit of money on a memory foam pillow and gave it away, it was too hot and my head sunk in like cement. I bought...

I use a latex mattress topper that looks like this. They come in different thicknesses. I switched to a Mulberry silk duvet many years ago b/c of night sweats. I will never go back to wool or feathers.

The test panels were ordered by my functional/integrative doctor 20 years ago. He worked at a biomedical clinic at the time that offered these tests. I'm not sure if patients were able to order the test panel on their own but I just looked at their website and they are no longer offering...

@Chestnut tree My blood and urine tests were sent to a lab in Canada.

@DokaGirl My doctor attended a workshop in Arizona in 2002 where Hemex Lab was located and met David Berg. There were also a few other doctors that treated ME patients at that workshop. David Berg flat out told my doctor that I had HHV6 reactivation based on my test results. My tests...

It was a theory from 1999 that pwME and now pwLyme and MCAS (add on more) were/are in a hypercoagulative (thick blood) state where injecting heparin dissolves fibrin. So the theory goes that a hypercoagulable state starves cells of oxygen and nutrients.

This article is from 1999. I had the ISAC panel done and it was normal. I didn't have the genetic profile done b/c I didn't feel it applied to me. David Berg is not a medical person. He or his wife was the owner of Hemex Lab that did the tests.